Hello Kayejo

I'm sorry to hear about your husband's diagnosis. It's obviously an incredibly difficult time for you all and it's disappointing to hear that you feel he hasn't been well supported since his surgery. 

We have had some gents post here on the forum who have had the same diagnosis and subsequently penile surgery although they've not tended to post regularly. I did want to suggest that you have a look at this thread by [@jl__79]‍. While Jon hasn't been active on the forum for some time he has included a link to a personal blog that he's written which is informative and I know others have found it helpful to read through. I'm also going to tag in [@David2]‍ here. I can see that he replied to some posts earlier this year and mentioned a support group that he and others have found useful. Hopefully he will see this post and reply to share his experiences with you. 

We do have some information about penile cancer on our website here but I also wanted to give you the link for an organisation called Orchid which is a specific male cancer charity. They also have a nurse helpline that you can call for advice and support. 

Alternatively, if you'd like to chat with our team of nurses you're most welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm. I'm sure they will be happy to offer any advice and support that they can. 

I do hope that you're able to find the support that your husband and all of you as a family need. Know that you're welcome to continue posting here on the forum if it helps to have a safe space in which to chat with others. 

Best wishes, 
Jenn
Cancer Chat moderator