It would seem i've picked my surgeon up wrong. My wife spoke to the nurse yesterday and we got told the dr i seen is a surgeon and the procedure on the 22nd is to take biopsies under general anistetic in accordance to pet scan data. I aparently need to see an oncologist (cancer doctor) first to agree a treatment plan and go from there. i wont see an oncologist till 6th of october and that scares me.

My concern is they already know its in one lymph node and worried that its going to spread and im going to end up needing a lot more surgery or terminal. I've no idea how quickly this can spread but google says its aggresive. 

The Surgeon should get the pet scan before the day of the surgery and i wonder if its bad things might change. ive discovered a relatively large white patch on the roof of my mouth and worry that its spread there. i'm also geting sinus pressure and theres a danger with the retropharngeal node also enlarged of it rupturing and causing severe problems. 

I think on the grand scheme of things the nhs are moving at a decent pace but i feel they could remove the lump on the 22nd as thats going to be getting done regardless of other treatment surely?

thats good i would think your radiotherapy will be in another 5 weeks ?

Hi 

Thanks for your reply, im going out of my mind with worry and over analysing my body. can i ask if you were getting a burning sensation in your tongue or back of throat?  Any nodes needing treated? 

My lymph node swelled up so as part of the process they removed it.

no real burning tho my throat was slightly sore now and again that's about it really.

so now I have the scar from under my ear to close to my Adam's apple.

i have 2 friends who have had similar both had chemo and radiotherapy and both have had no return.

so I'm hopefull it's a bit common and caught early like it sounds like you I think a couple of months of upheaval you will be fine I honestly think that as I think of myself too