Recently been diagnosed with NLPHL. The lymphoma itch is driving me insane! Wondering if anyone has experience of hodgkins lymphoma and if the itch abates after starting treatment? I sincerely hope so!
I am sorry to hear about your recent diagnosis and I hope that you will meet other members of the forum who have been diagnosed with NLPHL and that they will be along shortly to share their story with you. There is information on our website on NLPHL which I hope you will find useful as well as more detailed information on this rare type of Hodgkin's Lymphoma on the Lymphoma Action website on this page.
I can imagine this intense itching is driving you mad! I hope that treatment will help relieve this itching. Do talk to your medical team about how much this itching is affecting you - I am sure they will be able to tell you whether treatment will improve this for you or they may have some helpful suggestions on what might help.
I had a look on the forum for other members who may have had a similar diagnosis and I thought I would mention [@John81uk] who was also diagnosed with nodular lymphocyte-predominant Hodgkin lymphoma and you can read his story here. Another member, [@Jingle] , posted this thread about a year ago and mentioned their son was then diagnosed with NLPHL so it could be another great person for you to chat to here.
Our nurses are also available on this free number 0808 800 4040 if you would like to talk things through with them or ask any questions. Their line is open Monday to Friday from 9am to 5pm.
I hope everything goes well with your treatment and that this uncomfortable itching goes away soon.
