Oesophageal Cancer

I was told I had oesophageal  cancer two weeks ago, telling me the tumour was in oe place and they could operate, I would have fours weeks of chemo than operation and another  4 weeks of chemo,

Yesterday I started my cancer journey, I had to go to the hospital for a laparoscopic to see the lining of my stomach, 

When the surgeon saw me yesterday afterwards, he told me the tumour was too big to operate, I don't understand it's was only 3cm  told me he would get in touch with chemo team and get it sorted asap, expect a phone call, and maybe if it shrank he could operate and that was it, I didn't have time to ask him anything he was gone, the nurse who was with me told me to get a bucket list, 

as I was only in day hospital all I wanted to do was get out, and scream, but I had to tell my husband who came and picked me up, he was in shock well to be truthful we both were, I'm a very positive person, and I will fight this, but my head not in a good place at the moment who can I talk too, my cancer nurse, help please

 

 

  • I am heartfelt sorry to hear this but I would ring the nurse back and ask for clarification, as hubby has 10cm tumour and is having flot chemo with the hope of removal, it depends if it's near the aorta as to if it can be operated on, it's a devastating diagnosis and so confusing because we to have been given conflicting advice, in the end I wrote down all questions I wanted to ask and got them clarified from the oncology nurse.  Contact somebody today if you can and ask them in layman's terms what can be done.

  • Would also advise you to ask them to be honest about side effects and repurcussions as you need to know, what's coming. 

  • Hi, 

    thank you very much for your advice, rang up my cancer nurse, and she on holiday, til 15 Aug, which was yesterday but the message is still on her phone, so I don't know weather she's back or not, I will write down my questions, but like yesterday I think he came to see between op's as he had his scrubs on, he put the camera down my throat, and also laparoscopic into my tummy, 

    I just don't know what to do,  I'm a very strong person but that was a complete shock, 

    thank you for letting me run on sorry

  • Thank you for your text,  don't know who to talk at the moment I know my own doctor is ringing me in the morning maybe he can help me, 

    kind regards 

  • Hey there Verity.

    You caught my eye when I was on here fishing about for something else. I guess you caught my eye as ANYTHING that mentions the O ( oesophageal) word draws me in.Why- well it is a very long story, but essentially my then 56 yr old husband was diagnosed totally out of the blue with stage 2 oesophageal cancer in July 2020 and I have been posting here ever since! 
    Before I go any further, I would like to say he is still here and now disease free (for now- I always say that- not tempting fate etc), in fact he has just kindly made the dinner (:

    You at this point think you are probably the only one- you are absolutely not, we OC's are all over on another board- look us up , there are loads of us! All with different treatment plans - there are loads of them too. If you want to come over, click on my 'blue name' next to this post and have a look at my followed discussions.

    Ask anything you like, if you want, we have 'lived the dream' for 2 years now! 
    best wishes

    Hilts

  • Hi Hilts,

    thank you for your texts I will definitely check out all the boards, and take in every word, 

    I pleased to hear husband is doing so well,  I do feel a little out my depth with this OC 

    as I haven't had enough information and my head all over the place, don't get me wrong, I'm strong and very positive, but what I need right now are some kind of answers, I have got wonderful support from my family and friends, but I still want to know things, I'm speaking to my own doctor on the  phone tomorrow so hopefully he can guide me in the right direction, 

    thank you very much, 

    verity

  • Ask away Verity- we are 'experts' in the lived experience (:

    Belive it or not, you are at the worst part right now- brain close to exploding , information and appointments coming out of your ears, people 'fussing'. To much information by far- stay away from google!( we all go on it though) It is at best a horror show and in my experience bears no resemblance to reality!

    Don't worry about 'staying strong'- I still don't know what that means- if you want to scream and rant, do so, let it go. 
    hilts