I posted this on the nurse's board by mistake My sister just got the news yesterday she has stage 4 cancer, it has come as a huge shock to all of us.
She had spots of blood going back 18 months ago here and there and then more blood in May last year so went to the GP.
She also has stage 4 chronic kidney disease and was seeing a renal consultant too, her bloods were taken and seemed normalish but her haemoglobin started to drop, they presumed it was due to her kidney, she kept pressing them saying she felt tired and they said her iron levels were fine, even though her red blood count was high ( I think - she is very knowledgeable about all this). Eventually the GP sent her for an endoscopy and colonscopy and she was scanned from her neck down to her pelvis to find out where the bleeding was coming from in October.
They both come back clear and the scan revealed she had a cyst on her ovary and nodule on her thyroid, she also had a hernia (which she knew about) but because of her kidney they wouldnt operate on it.
When all the tests were done they left it and she kept asking them about the bleeding and sent numerous emails to her consultant and the GP, the consultant just said it was possibly her kidney and put her on EPO injections ( a hormonal injection to help her kidney function in Dec/Jan ), she had a really bad reaction to it and they took her off of it after a month, In two months she put on nearly 4 stone after the injections and started bleeding from her belly button.
Finally in May she went to do a urine sample at her renal check up and it was pure blood and they still put it donw to her kidney, the next day she managed to see a clinican (as GP's were too busy!) and the clinician started to refer her to a gynea, and other departments and it culminated in a hysteroscopy about 6 weeks ago which left her pooring with blood and a referral to an oncologist and now this diagnosis, we are distraught and shocked to the core
BUT they are saying because she has stage 4 kidney disease there is nothing they can do????
She has been referred to another oncology surgeon who has agreed to see her as she is bleeding all the time since the failed hysterscopy and so her quality of life is seriously impaired. The have found she has endometrial cancer bilateral lymph nodes and umbilical hernia cancer . He said he may take her womb away if she passes clinical tests with the anaethetist but no radiotherapy or anything else.
I read somewhere someone who had stage 4 kidney disease and heart failure had surgery AND radiotherapy....
So surely she can have something else, she has been let down so badly by the NHS trust we are under, both her renal consultants (there were two) and two consecutive GP's
I want to know if anyone else has experience of having kidney disease and still having other treatments for stage 4 cancer?
Thanks in advance