Hello hope your doing ok 

I think it is for fear there might be tiny microscopic cancer cells that did not show up on the CT scan but that might cause recurrence in the future (the terms there are probably all wrong, but as far as I can figure out, that's the gist of it).

I do think it's odd that they can't delay treatment though. My specialist said about the original operation that "that's not going to do anything in the immediate future, but psychologically, it's probably better do it soon" and that the radioiodine treatment "could be arranged at your convenience but should probably be done within the year."

Hello natalie

how are u you keeping now? I have also just been diagnosed with this variant , have you had your radio iodine treatment? 

Hi there I am still plodding along. Sorry to hear about your diagnosis. I have not had any RAI as was told by nuclear medicine specialist that they didn't think I required it as my biggest nodule was not quite 1cm it was 9mm. 

Anyway I have still been having issues with my Throat so I was sent for an ultrasound and they took 2 fnas. One came back as a reactive lymph node and they weren't quite sure about the other so I was sent for a whole body thyroid i123 uptake scan. I had to go to hospital 4 days on the bounce 2 days for thyrogen injections the 1 day for radioactive tracer and bloods then next day for the scan. They said that it looks like I have thyroid tissue remaining in my thyroid bed as this is where the uptake was but that the rest of my body seemed OK. They have sent a report of their findings to my endocrine surgeon and I have an appointment with her on 26th Jan to see what is what going forward. I may possibly need the RAI after all to kill of this remaining tissue. My thyroglobulin levels are still elevated at 9.8 and my thyroglobulin antibodies are high too at 365. When they should really be near undetectable and under 20 post TT although this could be due to the thyroid tissue still being present. I will know more at my next appointment. 

I have been experiencing joint pain since Christmas which is getting me down a bit. I will mention this at my appointment as not sure if it is a symptom of this condition or a side effect of the levothyroxine.

Hope you are doing OK? Keep me posted on your journey and if you need to talk I am always here.

Natalie x

Hi can I ask did you have a thy4 after FNA please? Not much on places about thy4 experiences. Thank you