Terrified and scared

Hi I heard the nurse wrong ,I thought she said I had stage three breast cancer , ok I thought I have a heck of a battle but my chances of survival are really quiet good .. when I telephoned my nurse all excited saying I had read some very good things about treatment my world imploded  she said no it's not stage 3 if fast growing and has spread into several of your lymph nodes is

it is a grade 3 tumour that I now understand through reading lots of articles on line mean I have in incurable an er and probably have two years to live... I am so sad... I wanted to see the world 

 

  • Hi Violet 

    thank you so so much for your support, the kindness of strangers is unbelievable, 

    I have a wig fitting soon , not that I am vain but I miss my hair, I had grown it from my profile picture and have shaved it off .., I was supposed to be be getting married on the 17/09;after 30 years together, it's our meeting day anniversary... 

    we have now postponed it till next year .. 

    tomorrow I will dance I think , my daughter said mum please have a boogie down I miss boogie nights with you... so I will xx 

  • Thanks.  That's the same one I had.  I had 5 of Filgrastim for every 1 dose of EC chemo.  I have no idea why we get different amounts but I did have 10 during one round of Docetaxel.  I only got to 7 of them though, my white blood cell count went far too high.  Your red and white blood cells are lowered considerably while on chemo and your body doesn't have its usual defences, aka your immune system. I didn't have the bone marrow pain from Filgrastim until on Docetaxel.

    It will be because you're HER2+ that you're getting the EC chemo quicker.  They put you through the first type of chemo quicker because of it.  I got mine every 2 weeks also. 

    Lol, sadly it won't be reducing just yet, or so you would notice.  But it would be great news to get a reduction in cells showing in your next scan.  Calcification can be left behind when cancer cells are killed, which unfortunately means the same size as your original tumour needing to be cut out. But that is much later on.  The cancer shouldn't be sore, maybe pressing on a nerve.  Keep positive and hopeful and only phone up about the Filgrastim if it starts causing pain in your collarbone or above your breasts.  It's quite obvious to save you guessing.

    You stay on your feet if possible a reasonable amount of the day for blood clot avoidance.  I think that's very sound advice from my Oncologist.  But as the others say, have a rest and get your feet up the rest of the time, watch a movie or treat yourself as chemo can be quite intense on your body.  You need to rest too.   

    Did they give you steroids? xx

  • it  just wishing them... 

    had another wobble 

    I seem to feel like a buzzing sensation in my boob , like a very low current going through npmy breast, any idea what this might be? 
    I seem to be ok 

    just still so Terrified 

    I joined a Facebook community thing and then got terrified.. my head is all over the place ... 

    I know, I know our journey are all so so different 

    but there is so much heartbreaking stories of people. Who said they where clear ... I am so afraid ... my head is spinning out of control again ... my breast has been sore since I went to the doctor... 

    I try so hard everyday to be positive and am so grateful for Al, of your support 

    maybe I should get prescribed something for my sanity 

     

  • Hi Athena,

    Most of us are probably guilty of reading things we should stay away from.  But what you're still doing is trying to get your head around this, and that's fine.  You can't force your head to be ok with this, there's a range of emotions you need to go through but what you have to hold onto is that you are now on chemotherapy.  And it's doing something right now to your fast growing cells and most likely to the cancer cells too.  Ok? 

    Not sure what the low current feeling could be but it doesn't sound anything to be worried about.  How about concentrating on your breathing over the next couple of days and trying to take deep breaths in and out to calm yourself?  Whenever you get in a panic.  And if no better, you could make a GP appointment on Monday to see whether you need some tablets to take the edge off your anxiety.

    Having a sore breast is just something annoying.  It's not the cancer.  The hospital have carried out scans and seen what is going on in there.

    Remember to go out walking through the day if you feel overwhelmed.  It tires you out a bit and calms you down.  You'll be ok.

    How are you on the EC chemo so far?  

     

     

  • Hi 

    my biggest fear hsppened 

    I am classed as stage 4 

    pet scan lucked up 

    oligometastatic breast cancer I have cancerous cells in a lymph node near my liver

    no organ spread 

    mastectomy possibly double has been discussed 

    inam hearbroken 

  • Hi 

    my biggest fear hsppened 

    I am classed as stage 4 

    pet scan lucked up 

    oligometastatic breast cancer I have cancerous cells in a lymph node near my liver

    no organ spread 

    mastectomy possibly double has been discussed 

    inam hearbroken