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Terrified and scared

Justathena
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Hi I heard the nurse wrong ,I thought she said I had stage three breast cancer , ok I thought I have a heck of a battle but my chances of survival are really quiet good .. when I telephoned my nurse all excited saying I had read some very good things about treatment my world imploded  she said no it's not stage 3 if fast growing and has spread into several of your lymph nodes is

it is a grade 3 tumour that I now understand through reading lots of articles on line mean I have in incurable an er and probably have two years to live... I am so sad... I wanted to see the world 

 

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    I'm sorry for what your going through. It sucks. No one deserves this. I have BC different diagnosis but primarily the same. I know what a scary time this is. Don't look anything up online, turn to your cancer team or helplines and they can help you with anything you need. Online leads to a lot of unnecessary worry.

    Don't give up on your dreams of seeing the world. There's still time and always hope. Dreaming is good it gives us something nice to look forward to.

  • Offline in reply to 15

    Thank you so much

    we was supposed to be getting married on the 17th sept but I have postponed it as I don't want to go ahead whilst I feel so overwhelmed 

    I hope you have a good prognosis for your cancer

    gosh My heart is pounding 

  • Offline in reply to Billygoatt

    Yeah, it's good manners to ask.

    I think if you're the patient, there's no legal requirement to even disclose the fact you're recording. But it's the decent thing to do. If you're there on behalf of someone else, say, your wife, then it does need to be disclosed. That's my understanding, albeit a very hazy one, from my time working in the NHS.

    It's all to do with data protection.

  • Offline in reply to ProfBaw

    Please help as triple positive, results 

    although it has not spread 

    please please can you and your wife help me 

  • Offline in reply to Justathena

    It may not seem like it just now, but that is absolutely fantastic news about the no spread.

    I'll ask her to pop on later. Her cancer was locally extensive and she has come out of the other side with a complete response, so it's not all doom and gloom. It's weird as we're talking about BC here, but I'm really pleased hearing your news today that there's no spread. First obstacle crossed. Buy yeah i'll ask if she will pop on when she has time.

  • Offline in reply to ProfBaw

    Please please help I have to have 16 chemo sessions 

    I know it's good news that it hasn't spread but there is a high cance it will come back 

  • Offline in reply to ProfBaw

    I know this is good nes but. Ot that I am triple negative 

    wanted to try to find out what treatment was prescribed x

  • Offline in reply to Justathena

    Really glad to hear it hasn't spread. I was thinking of you.

    And I know this is completely different 'cause thyroid cancer is not the same as breast cancer, but after my operation, the consultant told me I was at high risk for reccurance. That was two and a half years ago (heck, almost to the week) and so far, there's been no sign of reccurance and I get the impression nobody is really expecting it. Of course, it could still happen, but all the tests I've had in the two years have shown all clear so far. So try not to worry about it coming back before you've even had treatment. I know that is easier said than done though.

  • Offline in reply to MargaretMary

    Thank you so much 

    I know I am in for a really rough time xx 

  • Offline in reply to Justathena

    My wife's treatment was 4 x EC, 3 x Docetaxel, the op, and she's just finished up 19 sessions of radiotherapy. During all this, she also has to get injections into her thigh for the HER2 part of the cancer. That's still on going every 3 weeks. She will also be on Tamoxifen for the next 10 years.

    The thing about chemo, it tends to be accumulative in nature, which means you will probably be next to normal on the first 2 or 3 doses of chemo.

    I won't lie, there was some tough and dark moments during the treatment, but being sat in the oncologist's room being told there's no sign of cancer did make it all worthwhile. It wasn't all bad, though. There were good times during the treatment too. Once you get into the swing of treatment, you will learn what will be your good periods and when you will probably have to lay low for a few days. Though, everyone is different and some people manage more than others. Your cancer journey will be unique to you, and only you, so what may have been rough for some, won't necessarily be that bad for you.

    If you haven't already got one, i strongly suggest you purchase an in ear digital thermometer.  It will be the best purchase you will ever make should you need it.

    Two other important things.

    1) If going on EC keep on top of any constipation. That can get bad

    2) At the first sign of any mouth issues, nip them in the bud. Buying a baby soft tooth brush is a good thing. It won't hurt your gums. But you'll be getting a dental appointment before the treatment and they'll tell you to be gentle too.

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