DCIS diagnosis

My journey started in June 2022, I'm 39 and a mum to 3 young boys. I felt lump one night and got it checked at my GP who referred me to the breast clinic. I had a physical exam and the consultant said she wasn't concerned as the lump was moveable but sent me for an ultrasound to double check.

the ultrasound showed a mass and they couldn't distinguish if it was a fibroadenoma or more serious, so took a biopsy but gave me a leaflet all about fibroadenoma as this is what she was certain it was.

a long 2 week wait and I got my results yesterday, it is DCIS. I'm devastated. The dr and lovely macmillan nurse have tried to reassure me that I have caught so so early that it will be ok but that doesn't stop the worry and panic and fear I feel, especially when I look at my boys. 
 

I am now waiting for a second biopsy and MRI to help distinguish the borders of some calcifications then it will mean surgery and probably radiotherapy. 
 

I am so scared but I've got this!! It won't stop me!! 

Parents
  • Hi Mazem83

    I am a couple of weeks ahead of you in terms of diagnosis and can understand exactly how you are feeling.

    I am in for surgery in two days time but the care I have had from all of the team is absolutely amazing.

    I'm keeping my fingers crossed for you and you are right, YOU HAVE GOT THIS !!!!!

    xxxxx

  • Did you have any calcifications? 

  • Hi 

    I pushed for a referral to the Breast Clinic since last October as had a patch of skin on my left breast that had changed, upon referral they discovered a lump in the same breast, both the skin biopsy and lump were benign, which I was delighted about, however they discovered on the mammogram on my right breast that there was calcifications, after ultrasounds, stereo biopsy and MRI scan I have been diagnosed with DCIS grade 0 and stage 2 to 3, I am booked for a mastectomy in August but told no other treatment needed as caught very early, I just feel so relieved, if I hadn't pushed for the changes in the left breast it wouldn't of been found until I felt a lump. I can honestly say the waiting for the results was the worst week of my life, the fear was off the scale, but now I know and know I will be ok I feel so lucky, I was meant to go to the breast clinic, the wait is without a doubt the worst part 

  • Thanks for replying.

    the waiting is totally the worse part, I'm just so anxious all the time and can't stop crying.

    If you don't mind me asking what size was the calcification area .

  • The waiting is awful, I feel for you. I also was told that one lymph node was swollen but came back as normal and clear 

    The DCIS is 45mm as I do not have a large chest to do a lumpectomy and get clear margins it would be easier to do a mastectomy which I was happy with, I had already decided that if anything showed up I wanted to have a mastectomy.

    When will you get your second biopsy results? 

     

  • I have 18th July as a date for results but the nurse rang today and said if all test results are back by this Friday when they all sit down and discuss cases then they may be able to bring this forward slightly.

    my lump is 2cm and a stage 0 DCIS

    the calcifications that they have just biopsied are 8cm (really  big I feel). I too have a small bust so I'm also already thinking I will be told mastectomy and have already mentally accepted this.

     

     

  • Hi Mazem

    just wondering if you got your results? Fingers crossed for you

  • Hi

    i got them this morning. It is as I thought more DCIS, like the original lump I found. Still grade 0 which is positive. However because of the total size of the calcifications and the lump (10cm) i will be having a mastectomy as a lumpectomy would leave me with nothing anyway (small boobs). Consultant also said that he will take and check a couple of lymph nodes, even tho these have come up clear on my scans he wants to double check.

    he also said he doubts I will have to have any further treatment after the op as long as when I've reulats come back from the op it's all clear.

    I have to now decide what type of reconstruction I would like then a date will be set for the operation x

  • Morning

    how do you feel? I felt relieve once I knew the results, the waiting was the hard part,

    Exactly same outcome as me, I am having my mastectomy on the 10th August, I am lucky as can have a skin and nipple saving option and having the straight implant, cannot wait for it to be over with now.

     

  • I had already got my head around having a mastectomy before the appointment, during my biopsy two weeks ago they told me the size of the area and I kind of knew then that this would be the outcome.

    im relieved the waiting for results is over as this wa last really getting to me, just need to get the ball rolling now!!

     

    he said it will be skin saving but I didn't ask about nipple- Will add that question to my list!! 
     

    im going to go for implant reconstruction also, he said It's that or a 50/50 (implant to boost any flesh they could take from elsewhere as I'm too lean for just flesh reconstruction.

    good luck for the 10th, hope it all goes well and that your recovery is quick x

Reply
  • I had already got my head around having a mastectomy before the appointment, during my biopsy two weeks ago they told me the size of the area and I kind of knew then that this would be the outcome.

    im relieved the waiting for results is over as this wa last really getting to me, just need to get the ball rolling now!!

     

    he said it will be skin saving but I didn't ask about nipple- Will add that question to my list!! 
     

    im going to go for implant reconstruction also, he said It's that or a 50/50 (implant to boost any flesh they could take from elsewhere as I'm too lean for just flesh reconstruction.

    good luck for the 10th, hope it all goes well and that your recovery is quick x

Children
  • I was exactly the same and said I didn't want anything less than a mastectomy, the Dr said I had no choice but I was happy with that, mine is 45mm but quite deep so can save the nipple.

    I am having the implant reconstruction, I can't face two healing areas and don't want to have the expander to have to go back under again

    good luck too x