Hi hun, no worries at all, the thing is even if it's in some nodes they can remove them all, my friend has just had all of hers removed and she has been okay. 
 

You know that sometimes just because it's bigger doesn't mean it's worse, my Tumor was small but was a Grade 3 my friends was 5cm but was a grade2

 I am sure that you scan will be ok as your Ultrasound looked clear in your armpit and that's usually where it travels first, they would of been able too see if it your nodes looked affected I'm sure of it. 
 

Trust me I wasn't calm when I was in the same boat as you! Gosh I was awful for weeks waiting for Results. Xxx

Thank you so much  

I can perhaps rest a bit easier for now,  I've been worrying so much today xx

Hi ladies

How are you feeling today Gemma? Hope you aren't still up Googling at 2am. The tiredness on top of being a busy working mum is hard enough without all this on top.

I had some good news today as my PET-CT came back normal. I cried with the relief. I've got to have more biopsies of both breasts though  as they think I might have DCIS (in both) alongside the IDS on the right. I've been jabbed so many times already my poor boobs and purple and yellow enough already. So still no treatment plan and I just want to get started so having to wait for more appts is stressful. My consultant is always saying she doesn't want to shoot from the hip and miss, and I do get that it's better to get all the info up front. The main thing I'm focusing on is the fact that there's no evidence of spread so far. My nodes are also 'unremarkable' on ultrasound so I'm praying they stay that way when they test during whatever surgery I have.

do you have a date for your next appt or are you waiting for them to come through for the scans? This waiting bit is definitely hard but we will get through it. Sending loads of  positive vibes & vibes for getting a good sleep! xxx

Lisa that's amazing news! 

I've been thinking of you all day, what an absolute relief!

Needless to say still a worring time with more testing and waiting but wow what a good day!

I got my apt for my CT - tomorrow. I'm over the moon to have the date. To be fair I'm pretty impressed,  diagnosis on the Thursday, mri Friday, Ct Tuedsay. They've just said it will be at least 2 weeks for the reports.  I'm feeling sick with worry that it's spread. I just want to know.

Told my manager today and taking a bit of time off to get my head around things xx

So pleased for you Lisa xxxx

Ahh thank you! Yes, it felt like a very good day. feels weird to feel so happy when I've still got cancer but today could have felt very different so im definitely feeling grateful.
 

I'm so pleased you have got your CT tomorrow. I know all these tests are horrible but when you get positive news it does make you feel stronger – it's given me a bit of oomph to want to throw everything at these *** cells now! I am keeping everything crossed for your results meeting – so good we are both being seen quickly! Have you had a ct before? I hadn't and though im not usually claustrophobic it felt very snug in there so I kept my eyes closed and tried to breathe slowly (im not very good at mindfulness but it felt helpful!). Good thing is that you go in and out quite quickly so it wasn't too bad at all. I have to have my new biopsies during an MRI scan as you can't see the areas on ultrasound. no idea how they are going to do that. I also got given a really good booklet today from the nurse. It's from Macmillan on reconstruction options. I'd recommend if you want info on any of that at some point. If my mri biopsies show DCiS in both I will definitely opt for a double mastectomy. One step at a time though.

glad you are taking some time off work to get your head around it all - and hopefully keep busy with some fun things with your little ones (or a bit of child free time might also be nice!)

good luck tomorrow. Let me know how you're doing after. Will be thinking of you xxx

I'm so relieved for you too

Yes I know what you mean - off to have uplifting news when taking about the cancer diagnosis but a clear scan is amazing xx

I hated the MRi , found it torturous but willed my self not to squeeze the help button as didn't want to have to start over with anything. I tried to do breathing techniques and mindfulness too. 

Xx

How have you been this week Gemma? Hope you're doing ok. I'm off to have another MRI today so they can do even more biopsies (during the MRI). I've gotso many suspicious areas in both boobs. Feeling a bit tired of all this - and being poked and prodded, but also know that I need to do all this to get the right treatment. I might treat myself to some Prosecco tonight! Hope you are having a good weekend xx

Hi Lisa 

Hope you went and got yourself that bottle of prosecco!

I'm just putting the kids down then I'll be cracking open a beer!

Thanks for asking after me. I think the numbness / daze of those initial days after diagnosis have passed but now feel a bit angry and *** off, reality of what lays ahead sinking in and also waves of panic about the staging scan praying it'd not spread further. 

I have an appointment to go back into to see the doctor on Monday- I've got 3 odd patches of smooth soft dark skin under my left armpit and I'm convinced a slight lump. My left boob mammogram was nothing detected and my right armpit nodes were clear on ultra sound. Breast care nurse said it didn't sound to alarming but they would check it out. They wondered why I didn't think to mention it before at my apts , but to be honest i never thought to mention it at the initial breast clinic apt then I was a bit of a wreck the day I went back for the biopsy result!

Might sound odd but just throwing it out there, have you or anyone else considered cutting oestrogen foods out of diet. I've stopped eating eggs and having so much milk but just thought the other day if its oestrogen fed thst might help a bit?

Also my right boob - the one that was biopsied hurts a bit now, I get a stinging pain through my nipple and underneath where the tumor is. 

Just trying to keep myself busy and mind off the situation. It's tortuous waiting for the mri and ct report

Xxxx

Hi Gemma,

Hope you don't mind me jumping in but I honestly wouldn't worry about eating eggs etc because of oestrogen.  I have triple positive breast cancer which means Oestrogen receptor positive, Progesterone receptor positive and HER2 positive.  You can get all different variations of this btw. I'm getting everything thrown at mine too.  The only thing we wouldn't be allowed to take is Hormone Replacement Treatment (HRT) as that's the opposite of what we need.  My breast tumours measured over 6cm too but as far as I know, didn't grow while I was waiting for treatment.  So try not to panic.  I was diagnosed back in November and have had 7 rounds of chemo (a round takes 2 or 3 weeks to get through and is all recovery time), an operation (I got away with a lumpectomy believe it or not and my surgeon used fat from elsewhere to reconstruct what was removed), that took 6 weeks to recover from the op but I needed lymph nodes removed from my armpit and that's uncomfortable, not gonna lie. I'm now on radiotherapy which is much easier than chemotherapy as it just makes you tired at nights and you have to be careful with your skin in the areas they're treating you, putting lots of cream on and keeping sunshine off your skin and then as I'm pre menopausal, I'll start taking Tamoxifen as in one tablet a day for up to 10 years.  Plus I also get thigh injections of 2 drugs every 3 weeks at the hospital for being HER2 positive.  You'll get used to side effects I'm afraid.  Your Oncologist should give you lists of possible chemo side effects when you're signing consent for chemotherapy.  Some of these sound a bit scary but we all get different side effects so you don't know how it's going to affect you until on it.

This makes us stronger.  You're going to surprise yourself and you're going to be fine, honestly.  It's a lot to get through but it's not all at once so you find you get time to let your mind process what we have to go through.  It's one step at a time and a whole load of hospital appointments but they're keeping checks on us, keeping us as safe as they can.  Use this time to see who all can help out with your kids when you don't feel up to it or need to go for hospital appointments.  You'll be at hospital once every 2 or 3 weeks to get chemotherapy into your body and then there are lots of scans.  And you need to arrange to get blood tests done 2 days before each round of chemotherapy so they can tell from your bloods that you're well enough to get the next dose.  It does take over your life a lot but going through it means you likely get to enjoy the rest of your life.  You get lots of help with managing side effects from the nurses.  They don't want to make us ill and most side effects like nausea can be helped with anti sickness tablets etc etc.  

I hope that helps a bit to get an idea of what's coming up and doesn't freak you out.  I've not met anyone who can't do it and being young and healthy sure helps.  You didn't give yourself cancer accidentally, it's likely something that misfires in your cells, not anything you've done.  Hormones eh?

Keep asking on this forum if you don't understand anything.  We're all in this club like it or not but all here for each other too.  It's not as scary as it feels right now to you.  When you're on treatments, you're working towards getting good news, getting the cancer out of you.  You can still have a drink and a laugh when you're up to it but eating good food and getting enough sleep all helps you to heal while you're going through it.  Take it one day at a time and get hugs from your family, they really help xxx