Newly diagnosed breast cancer and feel numb, angry and scare

Hello,

Not quite sure what I'm going to write. 

I lay awake again all night tossing and turning with a million things running through my head and not knowing what to do.

 

I was referred by GP to breast clinic a few weeks ago and yesterday I went for my biopsy results . I was rang by clinic the night before telling me they had a cancellation and could see me the next morning. I knew it was going to be bad news.

Ive been told I've got a stage 2 ductal tumor 6cm oestrogen positive. Thats about all i remember. I had to go in on my own whilst my husband satbin the car with the kids - the oldest is covered head to toe in chicken pox and no one could have them for us.

I'm in complete shock and can't stop crying. I'm 41 have 2 young boys.  No family history of breast cancer. I'm so angry, in disbelief, terrified thinking I'm going to die.

I'm currently breastfeeding my 18 month old, and have been told I have to stop feeding for treatment.

I have checked my breats every know and again , so when I found a huge hard lump from nowhere in my right breast I was initially confused thinking it was something  breastbfeeding related. 

Now I have cancer.

I've got my MRI tomorrow and awaiting CT for the treatment plan.

I understand its chemo, surgery, radio and hormone therapy.

I can't look in the mirror at my body without crying.i can't look at my husband or boys without crying.

I don't know how to tell my parents.

I feel like I just want to wake up from this awful dream. Why has this happened. Why didn't I notice sooner. 

And I know this sounds really crazy but the house we live in - it was up for sale because the precious owners - the wife died of cancer in the house and now I have this horrible completely irrational fear I've caught cancer from the house.  That sounds bonkers I know. I don't want to die and leave my 2 boys. 

I'm bed sharing with my 4 year old as he's so poorly with chicken pox, I just nipped to the bathroom and he yelled out mum where are you. That make me cry.

I'm a wreck

Please help me xxxx

Parents
  • Hi Gemma

    So sorry too meet you here! And your going through this. I'm 38 with two sons. I was diagnosed in October with Oestrogen Fed Invasive Ductal Carcicoma, I also went too the appointment alone as the GP didn't seem concerned. I have since had surgery Chemo, Radiotherapy's and I'm now having Anastrole and Injections to suppress my Ovaries.

    i assume that you are having Chemo first to reduce the Tumor size and then Surgery after? My friend who I met on here  had the same, my nodes were negative but my friend had all of hers removed as two were positive.

    The MRI and CT scan are standard procedures especially if you have chemo first, they use these scans as a bench mark as far as I'm aware
     

    j know how frightened you are I was the same, I would sit up all night with my Dogs crying, I couldn't look at the children without getting wet eyes, I went to the dark and thought up lots of awful things.

    If I can put your mind at some ease it does get better, your in limbo at the moment but once you know what you dealing with and the plan is fully on the table you will be able to cope with it. The treatment these days are amazing there is so much they can do. You will be okay, and Chemo isn't as bad as you may think, and if you have lots of support you will be okay.

    This is a bump in the Road, you will get through this, your young and strong and don't let it beat you. Your team will look after you, lean on your Breast Care Nurse that's what she is there for. 
     

    Go for a walk today and breathe the air 

    Lots of Love Sarah 

     

Reply
  • Hi Gemma

    So sorry too meet you here! And your going through this. I'm 38 with two sons. I was diagnosed in October with Oestrogen Fed Invasive Ductal Carcicoma, I also went too the appointment alone as the GP didn't seem concerned. I have since had surgery Chemo, Radiotherapy's and I'm now having Anastrole and Injections to suppress my Ovaries.

    i assume that you are having Chemo first to reduce the Tumor size and then Surgery after? My friend who I met on here  had the same, my nodes were negative but my friend had all of hers removed as two were positive.

    The MRI and CT scan are standard procedures especially if you have chemo first, they use these scans as a bench mark as far as I'm aware
     

    j know how frightened you are I was the same, I would sit up all night with my Dogs crying, I couldn't look at the children without getting wet eyes, I went to the dark and thought up lots of awful things.

    If I can put your mind at some ease it does get better, your in limbo at the moment but once you know what you dealing with and the plan is fully on the table you will be able to cope with it. The treatment these days are amazing there is so much they can do. You will be okay, and Chemo isn't as bad as you may think, and if you have lots of support you will be okay.

    This is a bump in the Road, you will get through this, your young and strong and don't let it beat you. Your team will look after you, lean on your Breast Care Nurse that's what she is there for. 
     

    Go for a walk today and breathe the air 

    Lots of Love Sarah 

     

Children
  • Morning Sarah 

    Thank you for taking the time to reply to my post and sharing all that information.

    Our situations sounds very similar and your words and kindness are reassuring thank you xx

    Yes I think they said chemo first because of how big it is.

    My mond has been wondering to the dark place , I could have written some of what you said in your message 

    I'm stuck imagining and fearing the worse but trying not to. I hate the waiting now for the scans and results. Praying it's not spread.

    I was meant to take a little part time job in September but now not sure I can or if they'll still have me with this diagnosis . I hadn't signed the contract yet. Part of me wants to curl up and hide the other part of me wants to plough on with everything as planned as much ad I can .

     

    I was just starting to regain my identify after having babies , getting a bit of my life and body back.

    Now I'm worring about loosing my breasts, they've suggest macectomy as the tumor is big and I'm a B cup. Loosing my feminity. The hormone therapy starts early menopause?

    I feel this is going to age and change me so much.

     

    I'm torn between emotions and thoughts.

    My breast care nurse is lovely, the team seem very organised.

    I hate the waiting game now xx

  • Hi Hun,

    I completely get that, I was diagnosed a week after my dads funeral he had a Brain Tumor, i helped my mum look after him and after he passed away I was wanting to find myself again as the worry had zapped the old Sarah away, unfortunately I was swept into this whirlwind

    Results are the worst and I would say don't be to down if plans change as you go along, unfortunately this does happen 

    I actually used the Cold Cap it was really hard but I had really lovely long blonde thick hair, I managed to keep some and it started too grow back after my 5th Chemo out of 6 which was a relief.

    I looked at it that results are awful but it's the only way we can be looked after. I had a Lumpectomy but my friend has had a Macectomy and she has had an implant, i understand what you mean though that's tough. I think that you never know, you will have to take each day and not try and look to far ahead, have they said anything about your Lymph Nodes? and have you had your HeR2 result yet. 
    The positive is it's hormone fed so they can give us tablets too stop the oestrogen. Yes I have gone into an early Menapause they asked if I wanted too harvest my eggs but I didn't want to hold anything up. 

    It's a tricky one with your new job in September,  I'm not sure you will be able to do it if your having Chemo and looking after but I can't say. I had FEC-T think you may have EC-T I have 3 FEC and 3 Docetaxil, I wasn't great for a week too ten days after but you do have a good few days before the next chemo, it's very Do-able, I can help you if you need me as I have been through it.

    It's a really tough long journey but unfortunately we don't have a Choice. I want you to know that your not alone and how you feel we all feel or have felt.

    You can do this xxx

     

  • Hi Sarah

    Thank you for replying to me. 

    I'm so sorry to hear about you dad. Can't imagine how tough that was for you and your mum.

    My husband lost his dad to throat cancer just before our second little boy was born a couple of years ago. It was devastating- still is. 

     

    I had my MRI the day after my diagnosis. Still waiting for a CT scan. I'm petrified it's spread and really want my CT and the reports back ASAP. It's on my mind all the time. I'm worried it's going to spread whilst I'm waiting. My tumor is 6am x 3cm. It's bloody massive. I can't seem to find anywhere much about the invasive ductal tumor  being that big. I need to stop googeling 

    I had ultrasound scan to my armpit when I had the biopsy and it looked clear on that. Praying that's the case with the MRI and CT. 

    I've read stories of one thing being changed to another after the MRI and CT.

    I could really do with some friends that have been through this too, thanknyiu for the offer of helping me through this xxxxx

  • Hi Hun, I have just realised I answered your first post a couple of weeks ago! Oh gosh I was wondering about you, the penny as only just dropped 

    You mind will be Engulfed for sure, if it makes you feel better my Ultrasound of my Arm pits looked clear and it was when they Removed two nodes too test at my Surgery, have they said that your Tumor is all IDC ? Could some of it be made up of DCIS? My tumor was 2cm but surrounding it was DCIS another 2cm of it. My boobs are tiny too. 
     

    Im so glad you told your friend you must lean of your friends and family.sounds like you and Lisa are at the same time line, hopefully you both can help eachother, I am certainly here too if you need me. I will send you a friend request so that you can message me on here anytime. 
     

    I know how you feel, all my friends were booking holidays, still carrying on! I was Angry that I was in the bubble, I'm out the other side nearly!! 
     

    I must be honest things seem slow at first but once you get going with treatments it happens really quickly.  You have got this and now you have found it it can be sorted.