New kid on the block - I have Essential Thrombocythemia

I'm newly diagnosed with Essential Thrombocythemia and feeling rather dazed and confused.  No side effects - either before the diagnosis - nor as yet since starting to take the chemotherapy capsules.  Just wondering what sort of effect they will have on me??

  • Hello E.Ssential

    I'm sorry to hear about your recent diagnosis of essential thrombocythemia (ET). It's perfectly natural that you're feeling overwhelmed by things. 

    It's good to hear that you've not experienced any side effects since starting treatment. Hopefully, this will continue to be the case. 

    I wanted to give you the links to two active threads here on the forum where we have quite a few members who have posted about their ET diagnosis and journey. Hopefully, you will find the posts helpful and you may be able to connect with others. The first thread is here and the second is here.

    We do have some information on our website about ET which you may find helpful, but I also wanted to suggest you might like to have a look at the Blood Cancer UK website as well. 

    If you would like to chat to one of our nurses about your diagnosis then you're most welcome to give them a call. I'm sure they would be happy to offer any advice, information, and support that they can. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I hope that this information is helpful and that tyou're able to connect with others who are living with ET soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator