Thyroid cancer query

I am almost 65 fit and healthy, had left thyroid removed in January contained 3.2 cm invasive encapsulated FVPTC, told it was contained in thyroid, no lymph nodes taken. Advised to have right side removed as had a small nodule less than 1 cm, This was carried out in May. Now informed this contained  2 areas of classic papillary microcarcinoma. Also told some tissue has gone to immunohistchemisty but results not back yet. As far as I'm aware no lymph nodes taken and again contained but communication with me has been poor.

Just wondering if anyone in  or been in a similar situation and what further treatment they had if any.

many thanks

Barnesgirl

  • Hello Barnesgirl and welcome to Cancer Chat.

    I'm sorry that the communication you've been receiving hasn't been the best. This must be very frustrating but if there is anything you are unsure of or don't understand then do try and see if you can talk things through more thoroughly with your team so you know what's going on and where you stand.

    Hopefully some of our members who have experience of thyroid cancer will share their experiences and advice with you soon but if you'd like to discuss any of this with one of our cancer nurses, they're just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope you're able to find out more soon and I wish you all the best moving forward.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hey, I had papillary thyroid cancer, which was dignosed by FNA. In your case, the odds are they will remove the rest of your thyroid. 

    They may or may not do radioiodine treatment. Given how small the nodules appear to be, they may not. Even if they do, that's really just swallowing a capsule. It's annoying because you are radioactive after it, so there are restrictions on being around people, but it doesn't hurt or make you sick or anything. It's just like swallowing a vitamin tablet.

    I would guess they probably wouldn't have taken lymph nodes, given that they didn't even take the full thyroid.

    Your situation seems rather different to mine, but the generalities are the same. 

  • Thanks for your comments MargaretMary. I have had all my thyroid removed good to know the RAI treatment isn't too onerous if I need it. 

  • Sorry, misread somewhere!

    The RAI treatment is more annoying than anything else, as there are injections beforehand and then isolation afterwards.