3rd lumpectomy nightmare

Hello all. Not posted here befure. 51 yrs , 2 x teen daughters, lone parent. Work in emergency services. 

diagnosed in Feb witha 10mm , stage 1 grade 2 invasive cancer in right breast. Lumpectomy results took 5 weeks to come back. No clear margin in one area and upgraded to 15mm but was also down graded to grade 1.

second lumpectomy on April - waited 7 long weeks for  results which I got this week. Unfortunately Another 15mm area of pre cancerous DCIS and a 3mm true cancer. Neither of which had shown on the mammograms. One area of no clear margin.

Offered a 3rd lumpectomy with or without a minor reconstruction (LICAP) or full on mastectomy. Previously I've been told the treatment plan, now I have to choose. 
 

i think I'm going for lumpectomy 3 with a LICAP. Genuinely not holding things together very well. Have a boyfriend of 2 years that's not supportive and runs away to put his head in the sand. So I'm ending the relationship.  Anyone had a 3rd lumpectomy? Consultant said I was very unlucky. This small 10mm diagnosis in February is becoming a monster and I'm pretty low. 

  • Sorry I didn't know, I've only just joined.

  • My surgeon doesn't think I'll need chemo, just radiotherapy. But found it very confusing as she and cancer nurse and cancer researcher all mentioned the optima trial to me. I refused the trial because well, it's a trial... not willing to risk it not being correct and receiving the wrong treatment. But why ask me to agree to it if I don't need chemo? So confused. Doesn't help that my husband seems to think I'm over-thinking everything. Yes, the cancer lumps are out (as far as I know) but there is still precancer DCIS. What if it has already turned into cancer? It's been months since first lumps were diagnosed. Is it weird that I'd feel bad asking for a second opinion? 

    Sent a DM XX

  • Hi

     I'm literally on the way to the hospital now for my results of 3rd lumpectomy. I've already decided I need to have a mastectomy now. The physical loss of my breast I can manage better than the mental grief I will have if I keep it. If that makes sense. Talked it over with boyfriend and he agrees in better at managing my body than my mind.  
     

    here goes 

  • My husband suggested going for a second opinion so that made it easier for me to do it. I'm not sure I would have otherwise, we're programmed to be "reasonable", so I totally understand. My cancer is Triple Negative so very aggressive and chemo is the only thing they can do. If you can sensibly avoid it, great. I think, if my second opinion had agreed with my hospital, I would still have felt it was worth it to have that greater confidence

  • Good luck lovely. I'll be thinking of you. Xx

  • Mine isn't triple negative. I don't particularly want chemo but want absolutely everything done to give me the best outcome. I lost my mum to breast cancer so is quite close to home. One cancer nurse said I woukd discuss my treatment with an oncologist once surgery is finished... 

    It's great your husband is so supportive. Sounds like he listens to you and discusses things with you. Mine is lovely, don't get me wrong, but he is reluctant to talk about it. As far as he is concerned, the cancer is out and this 'one more' lumpectomy will be the end of it. I've tried to express my concerns but he just repeats this again and again. I've given up trying to talk to him about it. He's probably just trying to keep me positive. He's wonderful otherwise. Maybe I'm being too negative? I don't know. 

  • Hi

    Well my 3rd lumpectomy (with stage 1 LICAP) didn't work out. The initial cavity shave was clear but the extra area  they took had a 3mm cancer, so it's a good job I opted for the LICAP as they may not have found it had they been conservative with the amount of tissue  taken.

    The MDT unanimously stated I should have a mastectomy due to the scattergun nature of my cancer. It's small, early and slow ..  but dotted  about  in a haphazard fashion. So, booked in for a mastectomy , prob late Aug after my holiday.  I'm pretty sure I want no reconstruction as I don't like the thought of more gargling with tissue / fat from a donor area. But it's good there are options and I may go heck on the future if being flat  isn't working out for me. 
     

    Boyfriend came with me abs was remarkably on board and together, bless him. So now me and my 17 yr old daughter are planning a 'farewell to my breast' party. It's easy to talk about but the doing part will be hard 

  • So sorry it wasn't great news. But thankfully, they found other cancer lurking which could have been missed!

    Did they offer immediate reconstruction with an implant? I didn't like the thought of being flat either. That was my plan if a mastectomy was to go ahead. My surgeon was on holiday when MDT decided mastectomy was the way forward. She disagreed when she returned, hence the 4th lumpectomy.

    How do you feel about it? I'm 47 and am not quite ready to lose my boob completely. That's why I opted for implant. Just hoping I don't have to make that decision in a few weeks... My daughter has commented about it and said I'd better not end up with perkier boobs than her :laugh: 

    Glad you're getting away for a holiday before it. You deserve it! Where you going? 

    Nx

  • Hi 

    I've been offered reconstruction. Not implant - due to my other breast being the size / shape it is. But I could have a breast fashioned out of other body tissue but I really don't want that. I've opted to be flat. And if I change my mind, then I can revisit the options.  I think I could cope with flat. I'm not massive 36dd and think I'd be ok. Famous last words . I will have had 4 operations since Feb and I need a break from hospitals. 
     

    I know you're having a 4 th lumpectomy and I genuinely hope it's the last one for you. It's a long journey with one step forward and two steps back . I feel for you and will be crossing everything for you. 

    ive just turned 52 and no health issues. No menopausal stuff - quite active - thought I was ticking along quite merrily. Little did I know my breast was scattered with cancer . I actually felt - and still feel - really well. It's surreal . 
     

    A week away down south. Then my operation and 8 weeks later we have a holiday abroad so hoping to be fit and well enough to travel. Just got to find a swimming costume to accommodate my wonky chest. Sending positive thoughts x

     

     

     

  • I agree with you on the reconstruction using flesh from other places. Think I'd rather be flat than do that. I'm also 36dd. My nurse said the implant may be a bit smaller but not too much. They also have one they can pump saline into it to pump it up a bit. Anyway, not sure mine will come to that.

    Like you, I thought myself to be quite healthy. No health issues before. Just found a lump one day. Don't feel ill. Do get tired quicker though.

    Have a lovely time away, you deserve it! X