Hello Tootsweet74.  First of all, sorry to hear of your cancer diagnosis, and just to reassure you, it is perfectly normal to have a CT scan after a diagnosis.  I have had breast cancer twice and yes, it is absolutely normal.  Also, to answer your other question, I can assure you that the consultant would NOT lie to you about the prognosis......if he or she says that it is treatable, then you can be absolutely assured that they are telling you the truth.  Good luck mate, xx

Hi

Thank you so much for your reply. I'm so sorry you've had to go through this twice. It's absolutely horrendous. Everything seems a blur at the moment. Hopefully I'll get some clarity after my appointment today. Thank you for your reassurance, it's very much appreciated. 

x

I really feel for you and hope it went OK.

i think as soon as they have the CT scan result the

consultant can make an informed treatment plan and so very much hope this is the consultant getting you in to discuss that treatment plan with you. 
 

i had a similar thing when I got my first appointment. With the surgeon - was phoned by PA in the afternoon to go in the next morning and totally panicked it was bad news. Took the call offline in the middle of a meeting at work and when I went back one of my colleagues said after that I'd gone pale white and shaky. That's another thing- this is all a shock so go easy on yourself and try give yourself some

slack from normal life as

Much as you possibly can while you process it all . Sending hugs ️

Hi

i had my Consultation this afternoon following the CT scan yesterday. I was told that I have Triple Negative Breast Cancer. He had a look at my CT scan while I was there, he said the lungs looked clear but there was a spot on the liver and bone but it could be nothing and the scan would be discussed further later this afternoon. I was contacted by the Consultant later this afternoon and he said things weren't clear so I'm now being sent for a PET scan. I'm absolutely distraught, I worried sick incase it's spread. I don't know what to do.

x

I'm so sorry you are going through this . Remember - it's too early to tell /segg CJ one guess what the diagnosis and treatment plan is but easier said than done. 
 

I've been in a similar position of being absolutely distraught not knowing what's going on. , I phoned the helpline associated with CRUK, Breast Cancer or McMillan helplines - latter I think maybe they're open until 8pm and asked the nurses questions snd they chatted it through with me. It's so incredibly stressful . The other thing is - it's completely normal to be upset. As d anxious and it will not always feel like this, the initial diagnosis time I found the hardest and once I had a plan it felt easier to process. Sending love and hugs ️

*sevond guess (sorry) 

Thank you, I just thought if I could get the all clear with the CT scan I could deal with the diagnosis. The MacMillan nurse is going to contact me tomorrow so hopefully she will help but I'm absolutely dreading the PET scan. 
 

I hope you are doing OK. 
 

x

Hello there. I'm really sorry you find yourself here. I was diagnosed in January with triple positive BC. I had a pet and CT scan at the same time. Waiting for results is just horrific. My best advice is to take deep breaths and remember you can only deal with what's in front of you and trying to second guess what results will be will always drive you to insanity. Hard as it is not to! You are not alone. Far from it. And your care team will help treat you. It's a scary place to be at first, but once you have a treatment plan in place it honestly does get easier. 

I am also registered with Care Oncology who prescribe a drugs protocol to run alongside any standard care you receive. They deal with treating cancer cells at a metabolic level and I highly recommend a look at their website if you want to give yourself a fighting chance of kicking this in the butt! Knowledge is power and I found that the more research I did, the more in control I felt.

Best of luck to you xx

Hi

i went to see my Oncologist yesterday, he said I had Triple Negative BC they discussed my CT scan in their weekly meeting. He said my lungs looked clear but there looked like a spot on my liver and bone. But as it's unclear he is sending me for a PET scan. I'm devastated I don't want it to have spread, it was hard enough dealing with the original diagnosis but if it's gone further I don't know what I'll do. I know there are thousands going through the same and I'm sorry you are too. I just don't know how to deal with it. 
 

I hope you're doing OK and thank you again! 
 

x

I totally understand. It was my biggest fear also. I discovered I had covid right after my pet scan. My lymph nodes on both sides showed uptake of the radio tracer and I freaked out thinking it had spread. I had two neck biopsies, but they were negative and covid was to blame. 

Our minds are very good at thinking the worst, but try and think the best outcome instead. Imagine that whatever showed up on the scan is just a blip. You will know one way or another very soon, but until then, try and imagine the best scenario. I know it's hard. There are lots of free meditations on YouTube that I listen to every day. They really help calm you during the waiting phase. 

Even if there are traces in other parts of your body, you can still be treated so please hold on to this thought when your mind wanders. Its just plain awful waiting and worrying though.

My lovely GP said imagine someone telling you that behind a closed door there is something incredibly scary waiting for you. Then imagine someone telling you that it is a lion. It feels way better to know what you are up against as you can get prepped. And soon enough you will know what's what and you will get on with healing. You will get through this. I never imagined I would, but I'm here and I'm having chemotherapy and I'm getting through it. 

Do you have support at home? Someone to talk to for a hug or a good old cry if it feels too overwhelming?  Xx