Cancer Research UK main site

Ovarian cancer and radical hysterectomy

ST67
Offline

Hi I am new to this forum - I had a raised CA 125 of 91 with a mass on my ovary and a radical hysterectomy 10 days ago and am waiting for test results next week. I have been told it is almost certainly ovarian cancer and the growth was on my ovary/fallopian tube. I am still reeling from the shock - it has all happened so quickly and I am frightened about the next steps. Does chemo always happen for ovarian cancer and how much is needed - I am 54 and have always been quite fit and healthy - I still need to recover from my op though so don't know when chemo might start either. I would be grateful to hear from anyone who has been in my situation. Thank you 

  • Welcome to Cancer Chat ST67 although I'm sorry about the news you were given. This must be a very worrying and stressful time.

    We have some information on how ovarian cancer treatment is decided just here but if you'd like to discuss this and any other questions you have playing on your mind with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope this helps and that you receive favourable news next week.

    I'm sure some of our members will be along soon to offer their support and advice as well.

    Kind regards,

    Steph, Cancer Chat Moderator

     

  • Offline

    Hello.

    I'm a little further down the road from you but my symptoms were similar. At first I was diagnosed with endometrial cancer but thediagnosis was changed to fallopian tube/ovarian cancer. It is frightening but I have now had a full hysterectomy on 16th February. It wasn't great but the pain control was good.

    My first chemotherapy sessions was last Thursday (31st March) not painful at all, comfortable chair, very friendly staff but a bit tedious. Worst side effect was the constipation following by diarrhea! I was warned I would lose my hair so have cut it very short in preparation and took two friends with me to choose my wig: not sure I'll wear it but good to have the option.

    My advice for what it's worth is this: a lot of control will be out of your hands so try and retain as much as you can and be up front with your family and friends - it's amazing how much support they will give you. And cry if you need to - it's unknown territory. Good luck. 

  • Offline in reply to Judith

    Thank you so much for replying to me Judith - it is so helpful to hear of someone else going through a similar experience although I am so desperately sorry this is happening to you too. I should hear from the oncologists soon and have my chemo starting in a couple/few weeks I guess. I have completely lost my appetite/losing weight and have just ordered some fortisip to help with the calories as I know I need to stay well for chemo - I think I am still not really coping with the shock of it all. A few weeks ago I was leading a full and healthy life but I am sure the same applies to you. I would also like a wig to look as normal as possible and I will need to get my hair cut too. Do you also wear scarves? 
    I am glad your first chemo wasn't too bad - that is reassuring - is it every 3 weeks? 
    I am sending you my very best wishes Judith and take good care. 

  • Offline in reply to ST67

    Hi again.

    Take someone with you if you can when you go for your wig. My lady was fabulous and made the whole experience fun. I haven't started losing my hair yet but intend to wear scarves - the brighter the better! When I do start to lose it I will have it shaved.

    Yes, chemo every 3 weeks, I think that's pretty usual.

    Like you I was pretty fit and active before the op and that has helped my recovery so stay as fit as you can and keep fighting. Let me know how you get on. J

  • Offline in reply to Judith

    Hi Judith 

    I really do hope you're doing ok. I had my first chemo last week and I will be going weekly now for the next 18 weeks - feels a long time ahead. I have been given lots of anti sickness pills so that has been helpful and otherwise feeling ok so far - other than still the shock of it all. I have also now had my hair cut shorter - but am trying the cold cap at the moment -  I am going to try wigs on Friday with a friend. It is my daughters belated graduation in York - postponed from covid - next week and I would really like to be there to support her. It is difficult knowing how much to do /travel as I know I need to avoid getting colds etc and yet life still goes on! 
    Take care Judith and I send all my best wishes to you 

    Shan x

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.