Hi Bob,

The NHS is truely amazing.

I've had a slightly different journey but other that some longish waits I've been so looked after. 

Take it easy but enjoy living 

x Efffie x

Hi Bob,

My experience is exactly the same as yours. I contacted the GP about prostate symptoms and my PSA score came back as 29 so referred for a bone scan.

I had the bone scan in early January and there was no sign of prostate metastases,  however, there was signs of a lump on my right kidney. 

A CT scan confirmed this was a 10cm tumour. I had the kidney removed by keyhole surgery  in early February,  was out of hospital on day three and am pretty much recovered. 

I do still have a prostate  biopsy to face in April and the MRI scan does shoe a 1cm abnormalty but, I will face that problem as it develops.

I would like to back up your praise of the speed and efficiency  of the cancer services. Good luck to everyone.

Wow!  Kidney cancer is frequently referred to as the silent one, because so many people have no symptoms whatsoever, like me.  It's frequently only discovered at the advanced stage 4 after it's spread to another organ as part of an investigation into something else.   
It's good you had your nephrectomy so quick.  Many others are waiting in limbo for a date (friends I've met on the Macmillan forum).  
Nice to read a happy story on this forum. 

Hey Bob, my father has had the same journey as yourself. Started peeing a very dark almost like vinegar coloured urine. 

We have had a CT scan today to see the stage and if the cancer has spread anywhere. On original ultrasound they estimated it as been 5cm on his left kidney. 

May I ask if you had any other symptoms?

My father is suffering from some back pain on the same side under the rib. Thank you.

Hope your keeping well and staying healthy, best wishes.

Kirsty 

Thank god you were dealt with so quickly, others have to wait months or more for anything to happen.

Hi Kirsty

sorry to hear about your Dad, I had no other symptoms at all and only peed blood once, my scan showed the tumour at 7cm but when the kidney was removed a couple of weeks later it was 10cm.

I wish him well with his journey.

kind regards

Bob

Our original urology date was meant to be on the 31st of March, exactly 2 weeks on the pathway from originally going to the doctors. However, on the 29th a few days before the appointment he had a stroke and ended up in Pinderfields at Wakefield. Because our urology appointment was meant to be at Barnsley he missed the appointment.

Was then a weeks wait for another one and then we had a 2 week wait for the full body CT scan. During this wait he also had a seizure and found that he had PRES on his brain.

We are aware that these conditions won't allow him to have imidiate surgery as he also takes warfrin. However, we are hoping there will be something that they can do regardless to not having immediate surgery.

Because of the persistent pain in his back we are worrying that it may be spreading. Although back pain is a symptom of kidney cancer we are still concerned.

We are awaiting a response from the consultants next week with results of the CT and how they are going to act upon it.

Its good to read so may positive stories of people having been treated very well even for the most serious, complex cancer cases. I appreciate your responses as they are very warming.

Due to the confusion that he has gained via the stroke its very hard to explain things to him and make him understand that regardless of the scan results, we will get him treated and on the mend all the same.

Thanks again and stay healthy and keep the awareness of how important going to the doctors is. Great work guys!