triple negative grade 3

hi, ive been diagnosed with triple negative grade 3 stage 2 breast cancer i've been given an appointment for a CT as it's in lymph nodes and told the stage could change depending on these results

i've been reading this chat for a week hoping i'd be one of the ones that got a good and unexpected result on the day but unfortunately for me it was bad news

im only 27 and have two little girls aged 1 & 4

im absoutley terrified i won't get to see them growing up and the wait for the CT is horrible i just want to know if it's cureable

never been so scared / upset / angry and fearing for my kids and i don't know what to do

has anyone been in this situation before and had a good result? please please say yes  

 

Parents
  • Hi Hun,

    I was diagnosed with IDC in October Grade 3. Not the same as you but I can completely relate with how scared you are feeling. I'm 38 with two boys they are 10 and 13 so older than your but they depend on my completely and I'm their Rock.

    I went to my appointment thinking it was a Cyst as the GP didn't seem Concerned, I actually went in my own and didn't even tell me mum. I just didn't think they would Say breast Cancer, they told me at my first appointment and confirmed it a week later.

    I know that this time will be so hard, having Scans and waiting for results it mental torture, our minds do to the worst case scenario. I spent nights sat in the lounge wth my Dogs as I couldn't sleep.

    You Lymph nodes are clever little things, They have done their job, stay positive that it's not spread any further, there is so much treatment available to you, you will be okay, we are young and strong and have no option but to Fight this will all you have.

    once you have everything on the table you will feel much better. Your team will have a plan for you. 

    This is a Bump in the Road, here if you need a Shoulder. 
    love Sarah 

  • hi sarah 

    thank you so much for replying you have definitely lifted my spirits a bit and i know i am not alone, i didn't expect it either especially with being so young, it makes it harder when you have kids because everything goes through your head

    how are you getting on now? did you have chemo or surgery first? i'm terrified i have more scans to be done but as the plan stands ill be doing chemo, surgery & then radio. 

    my mum had it at 47 and the chemo was awful i'm so scared about how ill be with my girls during that time! 

    my youngest turns 2 in two weeks so we have a little caravan booked just going to try and enjoy as much as i can before it's all guns blazing! i'm just ready to start the fight this waiting stage is stressful isn't it xx

     

    hollie x

  • hi there 

    thanks for replying, sorry your here too! it's really not a nice place but it helps a lot to read about people in similar situations and knowing your not alone 

    im glad you cope well with the treatment i hope i'll be the same, my mum was the same with that one week ill deifnetley get help during that time, it's just all such a shock but i just hope with how far everything's came we can come out the other side stronger than ever! it's really evil i feel so sad & angry, worried i don't get to see my kids grow etc, just need to pray now the next scan comes back clear and it can be cured

    wishing you the best , hollie x

     

  • Hi Hollie , keep strong, I know it's hard but nothing is gonna change where we are unfortunately! You have a lot to be strong for! I know it can be irritating when people say things like this and things like keep positive but my experience so far has shown me that the psychological part can be worse than the disease!  I have cried, been angry and yes the question why me but nothing changes where we are. 
    just enjoy what you can and ask for help on yr low days coz we all have them.

    you can do this. I am with you on having clear scans and having good treatment, praying for ya too! 
     

    love Kiera xx

  • hello,

    i know that's all you hear isn't it and yes it is really hard to be positive and strong but i hope that part will get better the more it sinks in, it's still so raw and every time i look at my baby's i want to burst into tears but at the same time they have kept me strong so far and always make me laugh, u never know by christmas time this might all be a thing of the past,

    keep your chin up, hollie xx

  • Yes hopefully it will be all over real soon and yes it does hurt when babies or grandchildren that mean the world to us put there arms around yr neck or cry , it touches our souls but we do have to be strong coz nobody will be strong for us. Unfortunately it is us that have to deal with i5. I always say it easy to be positive when we feel well but much less easy when we don't but you have to keep fighting for where we want to be.

    please don't think I'm hard but to get through this you have to put yrself as number one and afford any energy u have left to others.  You will do this I'm sure .

    love Kiera xx

  • i know it's really hard ..

    i watched my mum go through the exact same but i didn't ever think she'd have to watch me go through it, although she was 47 and is now 55 so that's a good bit of positivity & encouragement for us ladies  !  

    i don't think your hard sometimes you need to hear these things to stop being so weak, i'm not a strong person at all and always thought my mental health was my biggest battle but i guess this will teach me to be stronger than ever. 

    it's a cruel world it really is , but we can never EVER give up , this time next year i hope it will just be a memory for us xx

     

  • Hi I'm on my 4th Chemo treatment, I have 2 left.

    Im having FEC-T over 12 weeks. I had my Surgery first then Chemo I will have Radiotherapy followed my Tamoxifen.

    I have found Chemo tough but it is Do-able, I only have Side Effects for a week after and then get stronger for two weeks before my next one. Its not as Scary as you think and your side effects can be helped by different things. 

    My big advice is to make friends with other ladies on here who are at the simular stage of diagnosis as you if possible, I made a couple of friends on here who were diagnosed at the same time as me and are my age, they have been my Rocks because we all feel the same and it's nice to know your not alone.  
     

    Take each day as it comes, things change can change as your journey goes along, it's a long road ahead but lean on your friends and family, don't take this on alone. 

    love Sarah 

     

     

  • hello

    in glad your more than half way through the chemo and coping ok with it, i have seen how bad it can be with my mum it's really scary but i just want to get it started because right now i'm just left & worrying it could be elsewhere , i'm hoping to do the cold cap if possible but i suppose hair is a small price to pay for your life.

    another few months and the nightmare should be all over for you, i'm glad you've made friends with people at the same stage as you i haven't came across anyone yet but hopefully i will

    wish you all the best for your last few treatments & hope you recover quickly from it all , thank you for giving me advice it makes my day to have a reply on here and know this can be done

    love hollie x

  • Hi Hollie,

    First let me start by saying sorry about your diagnosis and how scared you must be. I was diagnosed with TNBC Grade 3 stage 2 in Dec 21.

    My plan is the same as your too. Chemo, surgery then radiotherapy. I have started my treatment and had my second cycle last week.

    I wont lie, that nausea was the worst for me. There are other side effects but what may bother me, maybe ok for you. (Everyone is different). Take any help offered, cos with 2 small children you will need it and be glad you took it. Lol!!

    Everytime someone starts a thread or posts their fears and concerns on here, and we do what we do best at helping each other to get throught it. 

    Right now, it doesnt seem it, but it does get easier my lovely. You can and will do this. Just think how it would be for you to inspire someone else who is just as scared as you are now. 

    Although Ive only had 2 cycles, I dont mind sharing what I know so far. Lol!! Remember Hollie, just believe that good things are on their way!

    Xx

     

  • hi there, i'm really sorry your in this nightmare aswell, it's beyond words how horrible it is 

    i'm glad your doing well so far with your treatment! i hope it all goes to plan 

    my biggest worry is that because it's in my lymph nodes that it could be incurable and ill be leaving my kids without a mummy, i'm all they have and every time i look at them i burst into tears 

    i hope i'll live to be able to help people like the lovley people including yourself on here have done for me!

    it's basically a lottery now and my kids having a mummy lies in the hands of the cancer. 

    the emotions & thoughts are killing me alone never mind anything else, can't eat can't sleep feel angry sad confused, just want to be told this is treatable asap 

    i hope your treatment goes well and continues destroying this poison and good luck for the surgery and reconvert afterwards, just can't get my head around this i don't think i ever will 

    praying for you & everyone going through this

    xx

  • Dear Hollie,

    Yes I can imagine seeing your Mum go through Chemo is really hard, so you know what you have in store. But I wonder if things have advanced in managing the side effects more now. Have you been given a Breast Care Nurse yet?  they are a real help, I would often ring mine and ask her to go through things with me. 
     

    I have used the Cold Cap, I had long blonde thick lovely hair, the only thing I liked about me! I wasn't going too let it take that from me.

    The Cold Cap is an experience, you will need to take some paracetamol an hour before, if you can get through the first 15 mins you will be fine. unfortunately my head is so small the cap didn't fit properly so I have lost my Hair on the top I look like a Munk haha, but I still have the length although thin. 
     

    Thankyou, I am pleased to to be nearly through the Chemo, when I had my Chat with the Chemo nurse it sounded awful but you don't get them all. 
     

    I will send you a Friend Request, you can message me anytime if you need too., I can help as much as possible. The trouble is everything takes so much time.  

    love Sarah 

Reply
  • Dear Hollie,

    Yes I can imagine seeing your Mum go through Chemo is really hard, so you know what you have in store. But I wonder if things have advanced in managing the side effects more now. Have you been given a Breast Care Nurse yet?  they are a real help, I would often ring mine and ask her to go through things with me. 
     

    I have used the Cold Cap, I had long blonde thick lovely hair, the only thing I liked about me! I wasn't going too let it take that from me.

    The Cold Cap is an experience, you will need to take some paracetamol an hour before, if you can get through the first 15 mins you will be fine. unfortunately my head is so small the cap didn't fit properly so I have lost my Hair on the top I look like a Munk haha, but I still have the length although thin. 
     

    Thankyou, I am pleased to to be nearly through the Chemo, when I had my Chat with the Chemo nurse it sounded awful but you don't get them all. 
     

    I will send you a Friend Request, you can message me anytime if you need too., I can help as much as possible. The trouble is everything takes so much time.  

    love Sarah 

Children
  • hey, 

    yeah it wasn't nice to see at all but she got there in the end! hopefully there's better help for the side effects now! yeah i've got a breast care nurse she had mentioned mcmillan aswell i've not phoned anyone yet i'm still in the depressed stage so hoping to be a bit over that soon 

    that's so sad about your hair at least you got to keep the length though ive been looking up chemo headwear and there are some lovley wee ones on amazon!

    i was going to try the cold cap but i think my head is quite small too, do they offer help with a wig if you take the cold cap and it doesn't work? my mum had a lovley wig but she never took the cap

    i hope the rest goes in quickly for you! i know what you mean about the time it's as if time has stopped i'm like please just start something to destroy this but what can you do

    thank you it really means a lot and such a help when it's someone in the same boat, best wishes xx

  • Hi hun,

    You will feel this way until you know what your dealing with, this is the worst you will feel, I thought up something terrible things it was torture.

    i was referred to a councillor by my consultant, that could be a thought for the future if you felt you needed support.

    Have they booked your Scan in yet? They will want too do all the scans and tick all the boxes and get some treatment plan in place. 
     

    At 27 I can imagine this came as a massive shock. I know it did for me.

    when your next appointment xxx

  • hey, 

    i know i'm just wanting to know exactly what's happening, they've gave me a rough idea already but no dates or anything yet!

    my next scan is tomorow and still waiting a date for MRI 

    it's absolutely terrifying everyone keeps saying be positive etc but i tired that last week and it was confirmed to be cancer so my world came crashing down now i don't feel positive at all most of the time 

    hope your doing well, much love hollie x