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Hubby's waited 4 weeks & still no treatment. What do we do?

Manfyh
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Hi all, my hubby was diagnosed only 5 weeks ago with Esophageal Cancer, he works in the Middle East and was diagnosed there after many tests. He arrived home 4 weeks ago and was referred to the hospital, since then he has had a repeat of all the tests he has whilst abroad but not. Been seen or spoken to by a doctor, a nurse saw him and said what she thought would happen treatment wise, we are now nearly 4 weeks in of waiting. I have tried all diff secretaries of different specialists and either get answer phone or they will get back to us, I know we aren't the only ones but 4 weeks of just waiting is starting to take its toll, what do I do xx

  • Offline in reply to ShaunB101

    Aha!
     Nice one- you will both be feeling like the proverbial at the mo, that's okay. Physically and emotionally.

    DID they fit you out with any 'fetching' kit?
    If they gave you 'supplement' drinks- trust me they are RANK LOL - honestly, with the advances in medicines, you think they would have come up with mojito OR IPA flavour! When my husband was in 'your way' , no way was he 'drinking that ****'  is what he said LOL- so we just used normal food 'adapted' , so like soup with gallons of cheese grated / melted in it. One of my best inventions was Rhoda's cream lollipops, the stuff that's like butter.  My husband was discharged once on Xmas eve, he had a full Xmas dinner - blended- okay, not happy with that, but I did 'threaten' him with 'suppliments'

    Please DO join the other board and read through our rollercoaster ride. You are absolutely NOT on your own here. I thought when 'we' were diagnosed that we were the only ones, but nope common as muck we are.

    I have only used this board during the last 2 years, it has been soooooo helpful, also 'good' to feel your are not alone.

    Once the shock has processed- keeping some sort of a sense of humour is essential, it got us through some dark moments, watching completely inappropriate, non PC old comedy. After all if you can't laugh, what can you do.......

    Glad your off the ceiling- You are probably looking at each other right now thinking wtf just happened- don't have a crystal ball, but I guess at this point that's what you both are thinking. For what it worth, I am still thinking that LOL.

    Take care and keep the faith, as we say on the other board.

    Hilts.

  • Offline in reply to Manfyh

    Sorry,Manfyh I didn't answer you question 

    What is the frothy , gungy stuff that is being coughed up.

    Likely to be saliva, but also added into the mix will be general body gunge.

    His oesophagus is well 'miffed', probably a tad inflamed as well after all the fiddling. So a combination of all of the above.

    and as for people asking 'are you okay' I picture you sat there saying "oh, yes thank you" , but screaming inside "of course I'm ******* not", arrrg. (:

    Hilts

  • Offline in reply to Hilts

    Thanks for answering, the GI nurse finally told us the same saliva gunk, well after more complaint Shaun had the stent put in, wide awake, saw and felt it all, hod he's hard core, so thankgod he can now eat and some calories in to fight this *** some more, Oncology on the 24th and chemo starting on 5-6 April which seems forever away but allows us still to run away to Gretna and get married xx 

  • Offline in reply to Manfyh

    Poor Shaun, 

    Sounds lovely- they can choose to have sedation or not, mine didn't for the first endoscopy, but has had sedation for every other one since- I wonder why that might be??
     

    The oesophagus will stay well miffed (my medical term ) for a while, so might be gunging for a while- hopefully not on your wedding night eh, LOL. Congrats Mrs.

    So stuff now moving. 3 weeks until first chemo- that is pretty quick and much on the money regarding time, but tbh, for those dodgy cells, including lymph's, their time is up! They are going to get a right slapping over the next few weeks, and will die like flies- death to dodgy cells (:

    So you are on the rollercoaster, car just pulling off. Our car is back at base and we have got off- for now (always say that not to tempt fate) Here for you both while on said ride.

    Hilts

     

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