NH Lymphoma diagnosis today.

49M. I've heard today that I have Non Hodgkin Lymphoma. I dont yet know what stage or type, only that I must have had it for at least 2.5 years as that was the first time I went to doctor about a lump in groin. Has anyone here been through treatment?

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  • Hi Tim52

    I'm really sorry to hear that you have diagnosed with NHL, but would like to reassure you, that in most cases,  it is considered to be a treatable if not curable type of cancer.

    I too am 49 and was diagnosed last year.  I had one noticeable swollen lymph node on the side of my neck, about the size of a walnut shell.  However, scans showed a number of other affected nodes in the neck, chest and near my heart and liver.
     

    There are lots of different types if NHL, but one of the most common is Diffuse Large B Cell Lymphoma  (DLBCL) and this is the type I was diagnosed with (stage 3).  The treatment is chemotherapy - specifically one called R-CHOP, a combination of 5 drugs.  I had the standard 6 rounds over 18 weeks.  It's tough, but totally doable.  The chemo is given intravenously as a day patient and takes a few hours.  I had my last round at the end of February and am awaiting the final scan results. The chemo works very quickly and the lump on my neck was gone after the first couple of rounds.  
    Chemo affects people differently and there are a huge number of side affects, most of which you won't have.  For me, it was nowhere near as bad as I had imagined.  You have good days and bad days, but by the third week of the cycle, you start to feel like yourself again.  I made it a goal to take my dog for a walk twice a day throughout and that helped keep the fatigue at bay.  It's important to look after yourself - eat well, moderate daily exercise, sleep well and take good care of your teeth.  
    To be honest, I found the diagnosis stage the hardest.  I first went to the GP August 2021 and did not get diagnosed untill late October.  Treatment started in November.  Waiting for scan appointments and results was painfully slow.  My first biopsy came back as inconclusive, so had to have a second one.  I know it's hard, but try to distract yourself and don't dwell on things.  The unknown is far scarier than the known.  Once you find out what you're dealing with and the plan to tackle it, it gets much easier.  This site and MacMillan were a huge help to me.  Reading posts from others who had been through it, helped me feel prepared and informed before treatment started.  Google on the other hand, is not a good idea.

     

    wishing you all the best

    sam

  • Hi Sam,

    Thank you so much for taking the time to reply. It helps SOOO much to hear from people who have been through the treatment!

    I have a PET scan tomorrow, some more blood tests and then hopefully I can talk with a consultant.

    I hope your results come back clean as a whistle!

    Tim

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  • Hi Sam,

    Thank you so much for taking the time to reply. It helps SOOO much to hear from people who have been through the treatment!

    I have a PET scan tomorrow, some more blood tests and then hopefully I can talk with a consultant.

    I hope your results come back clean as a whistle!

    Tim

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