Hi Twinmum.

Really sorry to hear you have received this news today. Its OK to cry and you are not being vain at all. The idea of losing a part of you is totally terrifying and any breast surgery and cancer diagnosis no matter how early and treatable has a huge effect on a person mentally and physically.

What was it that changed the treatment plan for you? 

Be kind to yourself! You never have to apologise for how you are feeling.

Sending hugs x

Thank you for the reply. 

When I went to get my magseed ultrasound they ended up doing more biopsies as there was another area they weren't sure about which turned out to be cancerous too. I have 5 small areas over a section of my breast. I do have large breasts so hoping the reduction works out. Xx

Positive thinking that all will go to plan for you.

I never heard anything today. I was told my breast care nurse would call me. I've been told she would call me on previous occasions. I've only heard from her once just after being diagnosed. Is this normal? Xx

That's ****. Sorry the waiting is being prolonged. In fairness I have only called my breast nurse once and she called back the following day. It was quite late in the day when I rang. So can't really say whether that's normal. 

I would get on the phone first thing and give her a call! Not fair to keep you hanging.

Good luck. Hope you get some news soon the waiting is the worst xx

I am at hospital tomorrow anyway to get another marker in so will if they know anything then. 

Xx

Fingers crossed for you tomorrow xx

So confused as when I went today they advised I was getting another biopsy, totally different information from meeting with consultant on Tuesday. Then they spotted a small blob which could possibly be haematoma from my biopsies 2 weeks ago so they decided to biopsy that too. I honestly don't know if I'm coming or going. Xx

Oh bless you that is so tough. 

Did they do biopsies today? The waiting is so hard and this is just adding to the time and understandably confusing.

So sorry this is happening to you.

What's your next step?

Sending hugs xx

Yes I had another 2 biopsies done today.

I'm so worried that it's leading to a mastectomy. Hopefully these ones are clear.

Once results are back it will go to MDT meeting then I'll no doubt have another appointment to discuss surgery plan, well that's what I'm assuming. 

My Husband called my consultants secretary today to ask questions as what happened today wasn't what we discussed on Tuesday. She wasn't there so I've to call back in the morning. 

Xx

Try not to go to the worst case scenario. As hard as that may be. 

I hope you get some answers tomorrow xx

Sorry I forgot to ask how your MRI went. 

Hey!

I'm not gonna lie it was pretty unpleasant. Could cope with the noise but got so uncomfortable lying in that position for An Hour!!!

Now for my appointment on Monday. Really dreading that they will have found something else but what will be will be.

Did you get any more news today!? 

Hope you are able to have a nice weekend xx

Hey!

I'm not gonna lie it was pretty unpleasant. Could cope with the noise but got so uncomfortable lying in that position for An Hour!!!

Now for my appointment on Monday. Really dreading that they will have found something else but what will be will be.

Did you get any more news today!? 

Hope you are able to have a nice weekend xx

Oh gosh a whole hour would have been tough. I feel claustrophobic thinking about that.

Good luck for Monday.

I had a good chat with one of the nurses who has been at most of my appointments. I've now been transferred to be under her care of her rather than a nurse I've never met. She was very apologetic about me not being kept in the loop properly. She is going to call me after MDT on Monday late on or Tuesday. Doubt my results will be back by then though so probably be the following MDT meeting before my case can be properly discussed. 

Yeah I'm making the most of this weekend and meeting my friends for lunch today and I'll be sure to have a small glass or 2 of wine. 

Have a good weekend too. Xx

Thank you!

Really pleased you now have a nurse on your team that you feel good about. It makes things so much more reassuring.

Enjoy the wine!! I've been to the pub to watch the rugby with a few beverages which has helped feel a bit more normal for a while! The stress will no doubt re-surface but enjoyed just being me again for a few hours.

Sending hugs xx

I definitely feel better as I now have a nurse that I've actually met on a few occasions now. My original nurse was based in another hospital, crazy!

Had a lovely day out. Was great to feel "normal".

How all goes well at today's appointment. Xx

That's good to hear about your nurse and so glad you had a lovely day out!

My appointment today went fine. Nothing unexpected found on my MRI so plan remains to have wide lump excision with bilateral reduction. Will have to take a bit more from my left breast than first thought and I will lose my nipple but hey ho.

She spoke about what would happen if they don't get clear margins and mastectomy was mentioned as a possibility down the line but she said she was optimistic about saving the breast.

So 10th of March it is! Now time to get organised!

Hope you've had an OK day. Sending best wishes xx

Hi PositiveT

Hope all goes well with your planned surgery.  I can honestly say that I have no regrets of agreeing to the bilateral reduction op.  When I asked the nurse about recovery time she said 3-4 weeks but I'd say be prepared for it to take longer.  My incisions are healing nicely now almost 5 weeks after the main surgery but I still don't feel ready to be doing anything too strenuous just yet. 

The worst part is now the itching and the fact I still have to sleep on my back but that's not a big deal considering the tumour is gone.  Best wishes for your op. x

Glad your appointment went fine. I suppose we just have to do what we need to. 

I ended up going in for an appointment yesterday. Biopsies were early cancer but that's me now got my surgery date and good to go. Mine is the 16th do not far behind you. Still hoping for clear margins from first op so I can get the reduction but what will be will be. 

We can do this! Xx

So glad to hear you have your date! It's a relief to have the next milestone to get to. Keeping everything crossed for clear margins all round! 

We will be recovering together haha!!

And you're right....we can (and will) do this xx

Hi JYM, 

Thank you for your kind message. It's great to hear you are happy with your decision and got clear margins (even though it meant a second op).

Hope your healing continues well and you get back to your usual activities as soon as possible. Itching doesn't sound much fun tho!

Sending best wishes xx

Me to

Going to get magseed tomorrow then will need to get organised with what I'll need for after surgery. Having a look at bras but not got a clue. 

We will be able to keep each other going after our surgeries. 

We totally got this

Ooh let me know what getting the magseed is like. I'm having mine put in on Monday.

I saw breast nurse today and she fitted me and gave me a compression bra that I have to wear day and night (except when showering obs) for a week to 10 days after the surgery. I've ordered another similar one as one bra for that long would be pretty rank haha. She also gave me a couple of heart pillows and a few other bits.

Do you have a nurse appointment before your surgery date? If not I would give them a call and see what they do at your hospital.

Sending hugs xx