Mastectomy DIEP Reconstruction

Hi all, 

I’m booked in for a mastectomy of my right breast, with removal lymph nodes and a DIEP flap reconstruction at the same time in a couple of weeks. In a bid to take my mind off it I’m going shopping! So I wondered if anyone would be able to give me any advice about what to expect that maybe you weren’t expecting or what to pack, take with me into hospital that saved you or that you wish you had taken? 
sending love and thanks to you all 

Sam xx

Parents
  • Hi Sam - I'll second what Mandy says - not as bad as you think it's going to be... I found the worst bit being the complexity of getting in and out of bed with the drains (I had them on both sides but I would think it's still the same problem whether one side or both)... things to take - Indispensable for me - a 3 metre phone charger cable, a couple of carabiner clips, and a couple of bag-clips (the ones like big bulldog clips) to keep things at hand, and attach them to the bed/ bedsheets/ me... and then in hospital they gave me a carrier bag for my drains and it was the best gift ever. You can buy a special bag for drains that hangs round your neck but I found a carrier bag worked fine. I also had a padded thing that went on the car seatbelt for coming home... you could just use a pillow but I found it gave me peace of mind and helped make it easier when I started driving again. I'd also agree with Mandy - I took pjs/ tracksuit etc. in and never wore any of it -- just needed clothes to go home in... but I did take a super lightweight cotton dressing gown (3/4 length) and wore it over my hospital gown almost all the time... it meant I could easily get out of bed and had hands free to carry the drains rather than holding the back of the gown together. Good luck - there is hope on the other side xxx

Reply
  • Hi Sam - I'll second what Mandy says - not as bad as you think it's going to be... I found the worst bit being the complexity of getting in and out of bed with the drains (I had them on both sides but I would think it's still the same problem whether one side or both)... things to take - Indispensable for me - a 3 metre phone charger cable, a couple of carabiner clips, and a couple of bag-clips (the ones like big bulldog clips) to keep things at hand, and attach them to the bed/ bedsheets/ me... and then in hospital they gave me a carrier bag for my drains and it was the best gift ever. You can buy a special bag for drains that hangs round your neck but I found a carrier bag worked fine. I also had a padded thing that went on the car seatbelt for coming home... you could just use a pillow but I found it gave me peace of mind and helped make it easier when I started driving again. I'd also agree with Mandy - I took pjs/ tracksuit etc. in and never wore any of it -- just needed clothes to go home in... but I did take a super lightweight cotton dressing gown (3/4 length) and wore it over my hospital gown almost all the time... it meant I could easily get out of bed and had hands free to carry the drains rather than holding the back of the gown together. Good luck - there is hope on the other side xxx

Children
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