Adult rhabdomyosarcoma - has anyone been through this?

Is there any one who is or has gone threw a diagnosis/treatment with rhabdomyosarcoma? This is generally a child/teen cancer and we struggling to find adult support. My husband 36! A rare case. Unfortunately my husbands cancer has spread to his lymph nodes and bone. The primary cancer is in right calf muscle. Secondaries in right inguinal lymph nodes, thigh bones and hips. 
We just hoping to reach out to anyone similar. We are in the uk, Lancashire. We have a 10 and 6 year old. 

  • I am sorry I can't help you with knowing anyone who has been diagnosed with your husband's cancer, it must be a truly awful time for you both and your family. After reading your post I felt compelled to just reply and say I am so sorry and I hope you are able to get in touch with someone who knows of this cancer and can give you some advice and support.

    Take care both of you.

  • Hi known this is an old post but I wanted to reach out as I have been diagnosed with the same thing - uk, 2 children age 5 & 8. Please tell me you found a magical combination of things that removed the sarcoma xx