Hi Meadowsweet, hope this finds you as well as you can be right now.

Just wondering how you're doing?  Also if you don't mind me asking, what is your treatment plan.  I had an allergic reaction to paclitaxel and they want to try again as an inpatient.  I'm bleeding again and will soon have to go back into hospital due to that. 

Hi 2me

how are you doing? 
im on gem/carbo on 21 day cycles to carry on as long as I can tolerate and as long as it works.  Side effects so far nausea headaches and crushing fatigue. I seem to sleep all the time some days but on balance it's not too bad. I see the oncologist again on the 15th hopefully to get an update. 
 

hope you are keeping ok

Hey Meadowsweet, it's ridiculously hard to know what to say...but I'm fighting with you! x

I don't know what gem is....but I'll look it up.  My plan was paclitaxel/carbo weekly for 12 and AC for... I can't remember.  Went into anaphylaxis within minutes of starting paclitaxel. They reversed the meds and I'm lucky to still be here.  Discharged myself from hospital as they couldn't do anything for me but observe.  Just coming back to myself now, a week later.

I've been doing lots over the last week, but I've started to bleed again and really I should be in hospital now.  Just want to get to walk the beach first.  I think if it would stop, I might not get any more treatment.  Once I go back in I'm in there hands and after last week...well...

Apart from that, the sun is shining, I've got the garden cut, walked the mountain (with no neuropathy) and I'll pack up the van shortly to take doggy to the beach. I wonder if I'll regret it in the future.

Hi, so sorry to read your posts to hear that things are bad for you.

Do you mind me asking if your Cancer was only diagnosed originally in Feb or did you have a primary sometime in the past, if so was your cancer not triple neg at that time?

Thanks 

Redcollector 

I think the post is feb 22 not feb 23 

love Lara ️

Thanks I missed that 

Red 

that thread is old maybe start a new thread it could get you more answers 

I'm akways here to chat help if I can love Lara ️

My sis just got triple negative breast w/liver mets.

Worth liaising on treatment options, any trials, anything at all we both learn?