Hi 2me,

Have you discussed your clotting issues and chemo with your consultant? There are different types of chemo and some are probbably better for you than others. A number of people have refused chemo at your stage for various reasons. Hopefully, some of them will come along to chat to you soon. There are also many other people like Fifa, who have found it so beneficial.

This is a big decision to take and one that only you can decide on. Ask as many questions of your care team before you decide. 

Whatever you decide, I hope that it's the right decision for you.

Kind regards,

Jolamine xx

Hi Jolamine,

I'm in again tomorrow for the bone scan results,  CT Monday and I've chased them up to get the results from the hospital that took scans last year.  The scans are sent by post!!  I was already aware of cost cutting in the service, when I didn't get a further diagnosis with a chest as well abo/pelvis scan.  If I'd got the chest checked, surely they'd of had more to go on as I found a lump within the week.  As I'm getting further into it, I can see more of the same problems.

So, not ten minutes ago I got a letter in the post asking me for CT of thorax/abdo/pelvis.  Now I hadn't said to the surgery consultant but I did tell the cancer nurse, by text, that I've had tinnitus for the past 2 years.  I'm a musician and could well have stood too near the drums but I don't know and how do they?  Nothing I'd like more here than to know if its gone to my brain because I've a few decisions to make :)

Peter grew his hair long during covid. Clients had been ribbing him about getting it shaved off.  Mine is an inch from my bum and curly; should always have had it like this!! I want to continue performing for as long as I can.  It's my mojo.  I don't want anyone to know. We're getting our heads shaved in the pub with a few tunes.  I'll make the eyebrows a thing...try and figure a not too radical change for people whilst having a full on metamorphisis.

I've never done any social media, imagine never done facebook. I think I'm lucky.  I don't perform under my own name either which has now turned into a double life :) Having my head shaved in public is far more public than I'd like :)  I was always shy and I'd hide behind my hair.  I'm not like that now thankfully.

Peter is doing well, although running round like a headless chuck trying to balance work and our trips to the hospital....which is a bit under 2hrs away.  We're laughing a lot which is always good: must get that brain scan :)

Meeting the chemo doc for the first time tomorrow.  He's the main one til op and then back to him for radiotherapy. Hope we get on!!! So far I've been lucky in there. Will impress on him my need of a brain scan along with the others. Hope he hears me.

Then CT Monday, back to this guy next Thursday and hopefully they'll have got the comparison made to last year's scans; I can only hope.  I want to see the speed of the growth because I've also intentionally lost weight in that time; if the TNBC could be fat fed as I've read, then I want to interprate that too; somethings I might know best.  I already checked out if the weight loss was intentional by having the most wonderful 2 days filling myself on the denied foods and drink.  Had a great time :)  Up 3kg...so that's good? It's ok I'm walking a lot :)

Just got to figure this out. Do I don't I?  One step at a time.  Would like to keep my hair ideally :)

Just got to figure this out. Do I don't I?  One step at a time.  Would like to keep my hair ideally :)

Good you keep fighting,you can use the cold cap but I didn't I lost all my hair but it does not bother me I did have  a wig but now it's growing back