I would go back to my doctor and get him to expidite my appointments things are taking longer at the moment but scans are still being done. Last Christmas l had a colonoscopy on new year and saw a gynaecology oncology surgeon in January, , You could contact the nurse that referred you to see if they can find out why you are still waiting, The surgeons secretary was really helpful and contacted the surgeon for me and got me a date for my surgery . 
l hope you have your scans soon with good  results, 

susie

Hi Susie, 

I am going to phone the nurse on Monday and see if I can push things. The scan of my Adrenal Gland seems to be holding things up. I won't get a surgery date until that has been done. I am struggling a bit now and feel on a downward spiral. Hopefully I can make some progress next week. 

I wish you well with your surgery. 

Update 

I dropped into Maggie's on Monday and spoke with one of the the Cancer Support Team who was, once again, great. Over the last couple of days she made some calls on my behalf one being to her McMillan Nurse contact. This nurse contacted Radiology and phoned me this morning to advise I have a CT scan booked for Tuesday morning. I am much relieved that I am now progressing through the system. 

Hiya . 
That is very good news . I'm relieved for you . Like you say at least you know for definite you're in the system and things can get moving for you . 
I wish you all the best and hope it all goes well . I have a results appointment tomorrow and am thinking I'll drop in to Maggies before I go for a bit of extra support . Anxiety is through the roof as I have no idea what I'm facing . 
Good luck and let us know how you get on . 

Hi, 

Thanks again for your thoughts and support. I am really thankful for the service that Maggie's provide. 

I wish you the very best for tomorrow and please let us know how you get on. 

Update on my pot holed pathway 

no further forward with liver lesion . No idea what it is so CT scan asked for . No surgery until we have an answer . Consultant said it would be very very unusual for this lesion to be connected to the primary at this stage especially when every other area is clear according to MRI and ultrasound . Started on endocrine treatment today which makes me a bit happier and more hopeful that this dementor will be annihilated before too long . Fingers crossed for a quick CT appointment and results to get things moving properly . Hope the next few days go quick for us . 

I was thinking about you today wondering how your consultation was going. I am pleased that you are feeling happier and more hopeful. I think your consultant's opinion is positive. I hope you don't have to wait too long for your CT scan. It's the long spells of nothing that I find difficult. It's a wee bit sad when the postman delivering news of a hospital procedure is a highlight. I look forward to my scan on Tuesday and hope that the node on my Adrenal Gland is nothing clearing the way for surgery. We both have a bit to go yet but I'm sure we will get there. 

Thanks for replying . Very much appreciated . It can be a lonely place and completely agree that the waiting inbetween is horrible . Me and my postie are on first name terms now although I do see him running past the house if he has nothing for me ! I wonder if he thinks I'm going to rugby tackle him to the ground ... 
yup we definitely have a way to go but at least things are moving which is hopeful . I can't believe this tiny liver thing is causing so much hassle . It will be the same for you as well but I get they need to check absolutely everything and then blast the other "thing" . Let us know how Tuesday goes . I'll keep everything crossed for you . 

Had CT scan of Adrenal Gland today. One more step in a slow moving process. Don't know how long I'll wait for the results. At least I feel like I am now making some progress. Hopefully the node is insignificant and I can have surgery some time soon. I'll post an update when I know something. I was thinking, whilst lying on the CT scanner, about all the wonderful advances in medical technology during my lifetime and yet the indignity of the hospital goonie still persists. 

I was thinking about you today and how it went . Hopefully you won't wait too long for the results and then can get going with the rest and start on the road to recovery . 
hahaha , the goonie is a corker . I had two when I went for an MRI and nearly choked myself in the cubicle  before I'd even set foot near the machine . 
I've got a CT on Thursday (seems to be my day for appointments) and have to go up a lane between two different buildings apparently to a mobile unit . I'm thinking twighlight zone ....It will be interesting if nothing else

let us know how you get on and fingers crossed for speedy results . 

It's a bit of a challenge trying to tie those things. Helps if you're a contortionist. Hopefully you don't have to put your goonie on before heading up the lane to the mobile unit. Now that would be twilight zone. 

Things seem to be moving a bit quicker for you now. Please let me know how it goes on Thursday. I will be thinking about you. 

A goonie flapping in the wind would put some folk off their dinner I'm sure

I'm hoping this will be the last test they will do and then decide what the plan is . It's been a long time coming anyway . I will update when I know a bit more . 
take care and good luck with the results . I'm rooting for you 

A goonie flapping in the wind would put some folk off their dinner I'm sure

I'm hoping this will be the last test they will do and then decide what the plan is . It's been a long time coming anyway . I will update when I know a bit more . 
take care and good luck with the results . I'm rooting for you 

I was wondering how your scan went in the twilight zone. 

I had a call from the Colorectal Nurse this afternoon. There is nothing sinister going on with my Adrenal Gland and I have an appointment with the consultant on Thursday to discuss the plan of action. I will be anxious and uptight however I can now see some light. 

I hope and pray that we are both moving towards the end of this particular journey and can say with confidence that we have beaten this thing. 

Hiya 

thank you for keeping me in your thoughts . It's heart warming  to know we all think of each other 

Great news about your scan results and contacting you so quickly was a definite bonus. I'm really pleased for you  . I'm sure they will be putting a plan in place for you very quickly to blast this flaming invader . 
scan was fine apart from the twighight zone losing all its active abilities before my appointment time . I had a call to say it had all broken down but they moved me to another department at a later time . I have no idea how long I'll wait for the results but I'm hoping for as quick as possible . It's another anxious time for us both but I have every faith we will get there in the end . No more tests just action now . 
let us know how your consultant appointment goes . I hope they get you booked in rapidly and you don't have to wait too long .  

Hi 

just a note to say best of luck tomorrow with your appointment. I really hope they give you a plan and get things going quickly . 
let us know how things go . 

Hi, 

Thank you for your thoughts. 

I was wondering how you were getting on. I thought you might have had some feedback from your scan. Hope you hear something over the next couple of days. 

I tried calling my manager today to give him an update but he's on annual leave. I don't know if I'll have a job to go back to. I think the contract is scheduled to finish around June. 

I received a letter yesterday advising that I have an appointment on 21st February with The MK Pre-Operative Assessment Unit. I think this is something to do with the Anaesthetist. Can't figure what the MK is.

Anyway, I'll give you an update tomorrow after I speak with the surgeon. Hopefully you'll have an update for me.

Take care. You are in my thoughts. 

I'm not any further forward as yet . Still waiting on scan results . I called the clinic today and the nurse said she would chase them up . How long that will take is anybodys guess . 
It's rubbish having to worry about work on top of everything else . I've been very fortunate with my managers thankfully and I'm grateful for their support but I know that a lot of people can't say that . I really hope it works out for you and your job is there when you've recovered and are well enough . It still boggles my mind as to how one day everything was fine and the next my whole life had collapsed . 
the appointment you got for the 21st will be your preop check . They will do bloods , height , weight and heart . Also a MRSA check . Plus a very long health questionnaire . I had mine 10th Dec . Bit like putting the cart before the horse really ! 
I wonder if the MK is the initials of the hospital ? 
I'm sure they will give you more info tomorrow and then you'll feel a bit clearer . I'll wait to hear how it goes . Good luck ! 

Things are now progressing fairly quickly. The target date for surgery is 15th March. Due to my cardiac history there are some potential complications so I require an echo and a pulmonary function test to be carried out first. The surgeon was very engaging and explained clearly the procedure and the risks. I find the whole thing daunting and it has taken a couple of days to absorb it all.

I totally get what you are saying. I think I am still slightly in shock. I was sitting in work one morning, feeling fairly content, when I got a call from my GP which was a life changing moment. My mind has been spinning since. 

I am just about to watch the rugby. Hopefully it'll give me a wee lift. 

Really glad you've got a date .I was thinking of you  Time will Pass pretty quickly I'm sure especially with all the other appointments in between . It settles the mind when there's more of a plan in place and it's good the consultant was informative . That's what you want and need at a time like this . I wish you the best of luck with it all . I got a call on Thursday morning to attend the clinic that day for my liver scan results . I asked the nurse what I was facing and she said it's good ! I honestly was on my knees ! The lesion is a benign haemangioma so it can stay put and keep out of the way . Op date 10/3 which isn't too far away . I don't have any issues with surgery at all if I'm honest . They can chop what they like as long as this thing is out . I know I'll be in pain etc but the way I look at it is if I'm breathing and upright , I'm winning . After surgery , well , I'll face that when necessary . All in its looking a lot more positive for us both and Scotland have scored .... Keep in touch please and let me know how things are going . It's really nice to be able to support each other at this horrible time . 

The rugby is a bit tense. 

I am really pleased to hear that you are also making progress. Our op dates are not far apart provided I can get all my ducks in line. Breathing and upright is a tad better than the alternative.

I hope you have a good weekend and I will update you on any further news.

Hi Jock  
just thinking about you and wondered how things were going ? I hope you're further forward and surgery is booked ? 

Hi, 

Sorry for taking so long to respond. I hope things are progressing for you. You have been in my thoughts. 

I have been busy over the past few weeks and have spent some time back and forth from the hospital. I am there three times this week. Things were going to plan and I was prepared for my surgery on the 15th. After I returned  from my appointment today, where my surgery on the 15th was mentioned, I had a call from one of the colorectal nurses. The call was very brief and I had the impression she could not get off the phone quick enough. She told me that the surgeon had not heard back from the anaesthetist so he has cancelled my surgery. It will now be some time in April and she will phone me when she has a date. I was a bit stunned and speechless. I am still trying to make sense of it. I am wondering what he needs from the anaesthetist and why he can't just chase it up. My surgery is two weeks away so why does it need to be cancelled. I have went in to a bit of a tail spin. They tell you that the best chance of surviving cancer is early diagnosis. I worry that I was diagnosed early enough for something to be done but it hasn't.