Hi there,

I had a 4cm lobular breast cancer. I had a mastectomy followed by 4 sessions of EC chemo. I also had one lymph node involved. I then had 15 sessions of radiotherapy. 

I had read that chemo wasn't effective for lobular breast cancer but when I queried this I was told that there's no way I'd be given chemo if it was of no benefit (it costs the NHS a fortune so they wouldn't give it for no reason) so, I decided to have it, even if the benefit was small. I also asked about lobular being "worse" than ductal. I can't remember the exact answer but it's something about hormone negative lobular being slightly worse than hormone negative ductal . If it's hormone positive there's really not much difference 

Thanks Moll

That's interesting about the hormone comparison and yes some people want chemo but aren't offered it . To me even if it's a small benefit I am going to take it. 

I have been told I am having 4 EC followed by 4 Pac , wasn't explained why the two different drugs.

Also having 15 x radiotherapy afterwards

x

Most ladies do seem to have both of those drugs. Or a combination of slightly different drugs. It's always worried me slightly that I only had 4x EC and nothing else. But I just have to trust my team and go with what they said !

Good luck with your treatments. For what it's worth (I know everyone is different) I had very minimal side effects with my EC. Felt slightly queasy for 20 mins the following morning of each cycle when I first woke up, but other than that I was fine. 

How are you Minty? How is your treatment? Hope all is going well. I have finished my radiotherapy 5 days continuing... still debating with my oncologist about chemo... in the meantime discovered i have CHEK2 mutation... let me know how are you ... hugs from Cambridge 

you must be very healthy and brave so minimal effect :-) What does EC stands for ? hope you are well and healthy! 

Hi there  It stands for Epirubicin cyclophosphamide. That's just the names of the drugs. I am doing really well thank you. Hope you are too x

thank you. i am told i will be having 4xTC 

Taxotere (docetaxel) and cyclophosphamide (TC) given the node negative scenatrion. 

Also learnt that my tumor is lobular but agreesive: Invasive pleomorphic lobular carcinoma (PLC). and htis is the reason it was classed as Grade 3. This is subtype of invasive lobular cancer which compromises approximately 1% of all epithelial breast malignancies and is characterized by higher nuclear pleomorphism and poorer prognosis than classic invasive lobular cancer (ILC). So chemo is now MUST and I feel good aboout choosing to go for it. 

Wishing you all the very best of luck with your treatment. X

Wishing you all the very best of luck with your treatment. X

thank you Moll72 x