Hi ALL< 

I was diagnosed with Invasive Lobular Breast Cancer two months ago:

ILC, 22mm, Estrogen positive, Progesterone negative and HR negative. The tumor was removed surgically (mammoplasty) when Sentinal Lymph Node was removed and his biopsy showed that it was negative (he was not infected with cancer). The margins around the tumor were cysts. Genetic analysis (prosigna) showed a "medium" level of cancer recurrence. The PREDICT predictive program (used in England) shows the chances of 10th annual survival:

• Operation 78%

• Chemotherapy 4%

• Hormone therapy 4% (graph attached below)

breast.predict.nhs.uk/tool

Reading the latest scientific papers, I know that Invasive Lobular Cancer is present in only 5-10% of all breast cancers and that the prognosis is not as good as for Invasive Ductal Cancer (IDC). I also learned that chemotherapy in ILC is not as successful as in IDC.

The Oncology Commission has informed me that I am on the verge of considering the benefits of chemotherapy and it is up to me to decide for or against chemotherapy. Both my parents died relatevely early (64 and 67) of cancer (gastrict cancer and rectocolon cancer). The big decision is now up to me to decide whether to consent to hemotherapy or not.

I would be grateful for your comment / and your experience in treating this unusual breast cancer. Thank you!