Hi Mandy, I can imagine what your feeling as I was diagnosed in September with IDC grade 2 ER positive HER negative to my  right breast and at this time unsure if it had spread to my lymph nodes, I have not had a mastectomy I had a lumpectomy. From the surgery they do they send the removed tissue to pathology to be analysed  and to attain a more specific grade as those given from the biopsies taken tend to be provisional until a full analysis can be done of the full tumour and nodes. This information can take up to 2 weeks after surgery. I think the only way I coped with this was to fill my time with my family and distractions of any kind, walking the dog with a friend, spending time with close people etc.. I think most people would agree that dealing with the waiting is the hardest thing throughout the whole journey.

My surgery results came back but shown it was a grade 3 not 2 but luckily had not spread to my lymph nodes, they had taken out 3 nodes and all 3 were clear thankfully.

I am now nearly 5 week post surgery and am awaiting the oxytype DX test result to see if I need chemo or radiotherapy. I must admit I am very anxious at the though of chemo but just by having the lumpectomy this has greatly helped in the waiting game.  This result takes up to 4 week from the sample sent as it goes to America and is specific to my type of cancer.

I am sorry I can't help or  give you a plan of how things go as we are all different and can receive a totally different treatment plan base on all the different elements.

I have my next appointment on 10 th January where I expect to get my oxytype   result and if I'm having just radiotherapy or chemotherapy as well.

the whole process is done in steps but depends on individual outcomes of each step as to what the next step will be so there is no way that I can see how we can be given the full plan at the start of the journey nor can we base it on others experiences, it's all individualised.

im sorry I can't be more helpful but I hope this gives an idea of why things arnt simple but also please know you are not on your own. It is a time where we worry no end but hopefully as your treatment progresses you will get answers and support to cope with whatever is the outcome turns out to be.

I hope for the best possible outcomes for you 

Kiera 

hello

I was diagnosed with DIS grade 2 in 2019. The lump in my right breast was 2cm. The mammogram I had had the year before did not show the cancer! I had a right breast masectomy and lymph nodes removed underarm. Cancer was found in 2 nodes. I recovered quite well from the surgery and was relieved when the op was over. I then had FEC chemo followed by radiotherapy. I am now on 5 years of hormone medication as I was HER positive. It really is one step at a time and have faith that your team will do the best they can for you. I am 2 years down the line and my energy levels have returned and I'm feeling well. I'm now looking at reconstruction, I have a meet with my Consultant on the 4th Jan .. another obstacle to overcome. I can only share my experiences but just know there is light at the end of the tunnel however overwhelming it feels now.

Best wishes

Silver 

hello

I was diagnosed with DIS grade 2 in 2019. The lump in my right breast was 2cm. The mammogram I had had the year before did not show the cancer! I had a right breast masectomy and lymph nodes removed underarm. Cancer was found in 2 nodes. I recovered quite well from the surgery and was relieved when the op was over. I then had FEC chemo followed by radiotherapy. I am now on 5 years of hormone medication as I was HER positive. It really is one step at a time and have faith that your team will do the best they can for you. I am 2 years down the line and my energy levels have returned and I'm feeling well. I'm now looking at reconstruction, I have a meet with my Consultant on the 4th Jan .. another obstacle to overcome. I can only share my experiences but just know there is light at the end of the tunnel however overwhelming it feels now.

Best wishes

Silver 

Thank you for taking your time out to share your story with me.. I must admit the team I have been with just a short time have been brilliant so I do have all the faith in them and what they advise going forwards.

I am glad to hear things are on the up for you and I wish you all the best with your reconstruction surgery.

Mandy