Newly Diagnosed…Feeling so scared

Hi there,

I was diagnosed with a small breast cancer in my lobular on Friday after undergoing a mammogram, ultrasound and biopsy. I have just turned 40 and this was so out of the blue. My lump is 8mm, so very tiny. My consultant discussed that he wants me to have an MRI and also a axillary ultrasound/biopsy to check my lymph nodes. He also said that the treatment would be surgery, radiotherapy and tamoxifen. To say I am terrified is an understatement. Everyone keeps telling me that it's really positive that they found it early and that it is still only small. I am just so scared that things may change after my MRI if they find anything more. Any advice or others experiences would really help right now. Thank you x

  • Morning, 

    So sorry to meet you here, I understand the shock you are feeling. 

    Do you know how long you have to wait for the MRI and Lymph Node Biopsy (LNB)? 

    it's really hard not to be anxious at this stage. I think it's really positive though that they are being thorough with the MRI and LNB now. They will be able to then definitely assess your situation and get surgery booked. 
     

    I have recently had my surgery last week and my LNB was only done then and so, like you, I am still waiting to see if they are clear or cancerous too! 
     

    Try to put it to the back of your mind, easier said than done, I know. Christmas season is here now, so try to embrace yourself in the joy of it. 
     

    Virtual hugs Mickey xx ️

  • Hi Mickey,

    Thank you so much for your reply. xx 

    My MRI is booked in for the 11th Jan, LNB after that if needed and then surgery booked for the 18th Jan. Very grateful that everything is being dealt with so quickly.
     

    I hope your surgery went well and you are feeling ok. It's just the waiting which is the hardest part isn't it. Do you know how long you have got to wait for the results? I am just trying to keep busy and stay positive. I have two young boys, so Christmas is such a lovely time for us usually. 
     

    Sending big hugs & positive thoughts back to you too xx

    Alison

  • Hi Alison, 

    Im really pleased that the MRI and surgery are booked so quickly. Although, I realise that it won't seem quick to you.  Yes, the waiting is definitely the hardest part. Don't quote me, I'm no expert, but the fact that they've booked your surgery shows to me that they don't think the outcome of the MRI or LNB will make any difference to the surgery type. Are you having a lumpectomy? 

    Thank you, I'm doing much better than I expected and Breast Care Nurse (BCN) was very pleased with my progress when I went back yesterday and removed some of my dressings already.  

    Generally, histology results post surgery take about two weeks, but I've been told to allow four weeks. I assume due to the festive period.  

    How lovely you have two boys, such a lovely time Christmas for the family.  

    There is nothing either of us can do now until January and so, as I just said to a friend, 'I owe it to myself now to put it firmly in the back of my mind now and enjoy Christmas' - you do too - and we can do it. 

    Virtual hugs, positivity and Christmas (we can enjoy it) wishes back to you - Mickey xx ️

  • Hi Mickey,

    so glad to hear the good news that you are doing so much better than expected after surgery. ️ xx

    Good to hear that like you say maybe as my surgery was booked first means a more positive outcome. Yes, it is a lumpectomy that I am having.

    Thank you again for answering some of my questions. It has given my mind a bit of a break and also given me a more positive outlook on my MRI/Surgery results.

    Like you say, we can do nothing now until January, so willl try and enjoy Christmas with the family and put things to the back of my mind the best I can. Heal well and please keep in touch with your progress.

    Sending lots of love and big hugs for Christmas.

    Alison xx

     

  • Hi Alison, 

    I was diagnosed with same only much bigger at 5cms cubed in November and just had surgery and lymph node biopsy, done mri and ct and next should be radiotherapy then tamoxifen. Plus more surgery on lymph nodes if some involved. 

    It is a lot to take in especially if you have kids, I have 2, and am l late 40s. The size they have caught yours at is good, it can be a bit more on mri and or in surgery with lobular my surgeon said, but treatment will probably be the same and you should even if bigger be treated and better, its just getting through treatment. I cope by pretending its not happening, listening to music, watching trash TV,n fleece duvets, and taking it one step and a time. Mine is stage 3 as its big and gone to skin but yours may well just be stage 1. 

    Wish you well and lots of love

    Silke

  • Hi!

    I see you've had a couple of replies already, including the lovely  [@MickeyM]‍ who has been there for me over the last few weeks. But I just wanted to add my best wishes as I was in exactly your position a few weeks ago - lobular cancer, 13mm tumour (bigger than yours but still classed as small).


    I had to have an extra MRI too, and that really freaked me out, as I was convinced they'd find something else but actually they were just being thorough, which I now appreciate. The surgeon told me they were doing it so that if anything else showed up they could deal with it at the same time during surgery. It's so much better knowing now and having it dealt with, than finding out later! 

    Anyway, my treatment plan sounds similar to yours - I had a lumpectomy (and sentinel nodes removed) last month and am on Tamoxifen already (so far so good!) and will have 2 weeks of Radiotherapy in January. 

    I also have 2 kids and when I was first diagnosed my world ground to a halt and I never thought I'd be able to enjoy Christmas! But the NHS is awesome, treatment these days is amazing, you are in such good hands and will be fine!! 

    I know I was desperate to read positive stories when I was starting out on this "journey" (sorry!) so I hope this gives you some comfort! 
     

    With love and best wishes for a Happy Christmas! 
    jenny xx

     

  •  

    Hi Alison,

    Welcome to our forum.

    I am sorry to hear that you have had a cancer diagnosis.  As soon as this happens our worries immediately hone in on  our children. You are fortunate that your cancer has been caught in the early stages and that it is treatable.

    I have had 2 bouts of breast cancer in the past 12 years. Like you, I immediately worrie about not seeing my children grow up and missing all of their life experiences. Since then I have seen both of them leave school, go to university, graduate, find gainful employment, marry and have a family of their own. I still live a busy and fulfilled life.

    I am glad to hear that your surgery and treatment has all been arranged. You can and you will get through this.

    Please keep in touch and let us know how you are getting on. We are always here for you.

    Kind regards,

    Jolamine xx

    Breast cancer is one of the most treatable types of cancer nowadays

  • Hi Alison, 

    Youre most welcome and I'm really glad you have a more positive outlook now.  Yes, let's both make a pact to try our best to put this to the back of our minds and enjoy the Christmas we deserve. 
     

    I'm really pleased you've had a few other replies also including from my dear friend @JJ73 who has the same cancer type and given you such a wonderful positive account and of course the lovely @jolamine who has been a constant source of knowledge and support to me and others for many years on this site. I hope their posts and @Silkiechickens have reassured you further. 
     

    Christmas Eve love and hugs to you Mickey xx ️

  • Hi. Will be praying for great outcomes and remission and total healing for you. God Bless. Happy Christmas.

  • Morning,

    Sorry to meet you under these circumstances. I was diagnosed on 8 Dec and have 2 lumps and one in my lymph node which was picked up at my original ultrasound and biopsied. I've just had my MRI and now I'm waiting to meet with my consultant to find out which surgical route (lumpectomy or mastectomy) I'm taking as they wanted to check whether the 2 breast lumps are separate or linked and then I'll get a surgery date. Then for me it will chemo, radiotherapy and Tamoxifen.

    I'm 44 with 4 children. I was shocked and scared when Hubby found the lump and I knew in my gut it was going to be cancer. 

    I find the unknown the most worrying and the constant waiting for the next appt but the advantage to finding out this time of year is that it's so full on I'm barely having time to think of it and we aren't telling family and friends until we have a surgery date or after because I'm going all burying my head in the sand as I just don't want to discuss it with them (my MIL would ask loads of questions)

    We just take one day at a time and cross each bridge when we come to it and we will get through it