After mapping looked for better way to keep hygiene level up finally discovered a Perineal bottle, by Boots, which wish I'd known about 3 weeks ago, but it's so good and easy to use. Still waiting for results of mapping.
I'm really pleased you've managed to find a product that is making life easier for you. Every little helps as they say and it's always such a lovely feeling when something so simple makes such a big difference.
Fingers crossed you won't be waiting too much longer for those results and they bring good news when they come through.
Thank you so much for this forum. Diagnosis Paget's disease of the vulva. Have now connected up with 3 other ladies who have all had different treatments for this disease and now talking privately, this will help me so much once a full diagnosis is known and treatment started. This is rare so not much known about treatments which makes this chat forum so valuable.
I'm sorry this was confirmed Maria but I'm really glad you've been able to connect with others who have been diagnosed and you're all supporting each other on this journey.
We have some information about pagets disease of the vulva on our website but if you'd like to have a quick chat with one of our cancer nurses about any of this, you're welcome to get in touch with them on 0808 800 4040, Monday - Friday (except bank holidays) between 9a.m - 5p.m.
I hope you have a wonderful Christmas and you're not waiting too long for treatment to get underway.
Continuing on from the chat above, if anyone else is diagnosed with Paget's disease of the vulva do message it really helps to chat with others. Treatment appears to vary in hospitals in England too. A long haul to diagnosis as mistaken for lichen sclerosus before biopsy
