Aml

My dad had mds and here nearly 4 yr later but now got aml and been told days to weeks to live ..booked to go away frid 24th dec til mond 27th and was taking dad with me..doc said its rapid growing but dad seems no different stil walks around and cooking meals eating .am so confused ..should i cancel xmas will he last til then i am in limbo 

  • Hi there ... so so sorry your going through this heartbraking time at the moment.... but as someone who's got grade 3 breast cancer ... and lost family to cancer and other health issues ...

    I'd say make the most of every day you have him ... treat each day as a bonus .. do Xmas early before he gets too poorly ... hold his hand on this last journey... say all what's in your heart ... leave nothing unsaid .. look at old photos ... ask him about his life ... bet there's lots you don't know....

    Someone gave me advice that's got me through ... don't look at the whole picture ... live in the day ... take every problem as and when it happens ... and it's o.k to admit your both scared.... share tears ...but don't waste a minute ... 

    Many have been where you are now ... your not alone ... go with your heart ... sending you a vertual hug.. Chrissie x x 

  • Thanks chrissie..i cant even see him at moment am made up with cold and dad cant catch it as he cant fight ingections...am so anxious as i lost my mum in march as well..what a rubbish year..i know am not alone and everybody goes through it but at the time you just feel alone and like why me

  • I know hun ... I lost 7 family in 14 months ... mostly over covid period ... couldn't even go to my sister's funeral only 10 at the time ... an uncle, a niece , etc and  just over a year ago we lost my 18 year old granddaughter to acute myeloid leukaemia ... 

    So I know too well that lonely road ... and for 4 of those months we were all on lock down and I couldn't even see family ...  I'm so aware how hard this is ... I came on here, and poorer out my feelings ... it's a safe place where others are going through their own sad times, but so many open their heart and will hold your hand through,  there's no easy way round ... it's taking each day and just getting through ... life is crule ... 

    So let it out on here ... reach out and someone will listen and understand ... we can't take your pain away but we can empathise ... xx

  • Omg am sorry ..i thought aml was in elderly ppl..i just dont understand aml when reading about it..my dad acting normal.walking cooking talking..will i find him in bed one day a just dont understand how quick this disease is and will dad just deteriate from one day to next ..am struggling to understand..will he even make it to next frid for a blood transfusion

  • Hi again ...

    My granddaughter was diagnosed in the February... 2 days before we were all going to Florida... just before covid set in ... so instead of mickey mouse she had 7 gruelling months of chemo, radio and a stem cell transplant...  her wonderful mum, my daughter in law, had to go nearly every one of those days to be with her ..then come home to her two youngest aged 5 and 7 ... and keep them as normal as possible, while her heart was torn in two ... only to loose her and hold her 18 year old daughters hand when she slipped away ...

    Like you I'd heard she had a really good chance to beat A M L ... we all believed that to the last ... like you all I could think was "why her" she never smoked or aware, she had a job helping little ones ... she was at college ... and all through she kept her amazing smile we all keep in our hearts ... 

    Why am I still here with so many health issues .. my grade 3 .. I've lived my life ... been there done that .. why wasn't it me instead of her just starting ... there is no logic .. no rhyme or reason ... it just is .. I will pop back if you want a chat or have a rant ... it's o.k sometimes not to be o.k ... Chrissie x

  • Thats awful...what a young age ..i feel selfish now ..my dad wont be having cheemo he will have blood transfusions ..

  • So so sorry ... I never meant to make you feel that ... I just wanted you to know your not alone ... you are going through heartache right now that's as much as I felt ... your pain is your pain and remember you have a right to feel that ...

    I've been on here 4 years now and seen so much suffering because cancer is so crule ... the message I wanted you to think about is take it one day at a time ... so so sorry....xx

  • Dont be silly a just feel for you too but at a young age is so cruel..my dad on other hand i can live with knowing he had a fab life and lots of memories ...yr right cancer sucks