I had a suspicious breast lump checked out a month ago at the local hospital. To my great relief it turned out to be benign however, the consultant told me that after taking tamoxifen for 10 years I should stop immediately.
So the week after stopping, my joints ached , my digestion altered my hair felt different and I felt exhausted. I really worried about my health.
A good friend who I met through treatment 10 years ago told me about this forum and there it is - there are significant side effects in coming off tamoxifen which nobody tells you about. Come on medics - we can't all be imagining these symptoms. When telling people to stop taking tamoxifen please give them so information about side effects, or consider if it's best to come off gradually.
Can anyone tell me how long it took them to feel normal again ?