Hi I'm new to the forum, but could really do with some help. I had to have my tongue removed last August, 12 hours in surgery and 3 weeks in hospital. I found an ulcer on my tongue just at the start of lock down last year, unfortunately I couldn't get to see a dentist. I seen my doctor and got a few swabs done which came back different diagnosis. Back and forward to the doctor for 4 months with no joy. I couldn't stand the pain any longer and took myself off to A&E. My doctor then made me an urgent case and got an appointment to see the specialist. 2 weeks later I was in surgery. I lost my tongue as the tumour was that big, They made me a new tounge from my stomach muscles which they call a flap. I had to have all my bottom teeth removed, and I now speak with a very bad speech impediment, had to use a peg to eat as my swallowing was affected. I refused the radiotherapy as I was told I would not be able to get reconstruction done as it would affect my jaw bones. My oncologist is amazing and I had chemo. The cancer had spread to behind my voice box and also my lymph nodes. The removed my lymph nodes as well. The good news is I'm in remission and the chemo worked it got rid of the cancer behind my voice box. I'm on a trial drug for the next 2 years and so far so good. I'm eating again but soft food only, I am lucky as they said I would be peg fed for rest of my life. I found out last week after a visit to the dentist that reconstruction is not possible as the stitched my new tongue to the back of my lip. The only way is to push my tongue back a bit which could affect my speech and my swallowing. I don't want to sound ungrateful I'm lucky to be alive but the disfigurement is really getting me down and the thought of my reconstruction kept me going through the chemo and everything that comes with it. I feel like I've hit rock bottom. Has any one else had the same operation as me. I could do with some help 

thanks sandra xxx