Dad's quality of life after lymphoma treatment

Hi everyone, it's 2 am and I can't sleep worrying about my Dad. He is post lymphoma, chemo and radiotherapy. The radiotherapy was very intense, left scar tissue and destroyed my dad's tummy. They say he has no good bacterial left in his stomach. They test regularly for cancer but the problem is his quality of life since (completely appreciate the opposite could be worse). He cannot eat without being in intense pain, you can see it on his face, he has to remain near a toilet and cannot move until he has passed the food. He says it's like razorblades as the food passes through him. He only passes watery substances, nothing solid and it is making him miserable. He has a great GP who takes his bloods regularly. But they have sort of said this is how it is now and he has to accept it. They have tried multiple antibiotics on cycles and suggest culture based yogurts to replace the good bacteria but it's doing nothing (we are talking years of trying different combinations to manage his symptoms) he is also given a mix of things like codeine to block him up and take the pain away and laxatives to make sure he can still go. It all seems so wrong to me.

  • Hello Anxiousdaughter24, 

    A warm welcome to Cancer Chat. I am so sorry your dad is suffering so much and that his quality of life has been impaired after lymphoma treatment. It seems that this is also affecting you a lot and that it has been disrupting your sleep and I hope that you manage to speak to someone about your dad's issues and that you manage to get some undisturbed sleep again soon.

    It really sounds awful what your poor dad is having to deal with on a daily basis and I know the GP has said he needs to live with this, but perhaps you could try and talk to another GP  - even if this one is really good it wouldn't hurt to get a second opinion. You can find out more about this on this page. I wonder whether you could also try and talk to his medical team who looked after him when he received treatment for the lymphoma and whether they might have experience of this type of issue occurring after lymphoma treatment and whether there is anything else your dad could try to alleviate his suffering or painkilling medication which might relieve his symptoms. Do mention to the doctors that he has been given codeine as well as laxatives and whether this is indeed a good idea. It's a shame that the culture-based yoghurts are not helping. I hope that they can find something that agrees with him and that makes him feel better and diminishes the pain. 

    Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm so don't hesitate to give them a call if you would like to talk things through with them. 

    I really hope you manage to find a solution to your dad's problem so that his quality of life improves. 

    Best wishes, 

    Lucie, Cancer Chat Moderator