Tamoxifen

Hi everyone I've been reading a few of the posts of you poor individuals experiences of being on Tamoxifen.

I had my lumpcectopy then 3 1/2 weeks of radiotherapy  Sept 2015. I tried all the hormone treatment drugs including Tamoxifen, Letazole, Exemestane, plus others. Out of them all, and at the time I had less side  effects on Tamoxifen until recently.....
I have joint ache all over, have trouble bending my fingers, weight gain, trouble sleeping, and fatigue omg unbelievable!!!!! I work as a cleaner 4 hours a day and by the time I'm finished I get home and I'm like a zombie absolutely shattered!!! I just now chill and relax when I can and if it means having little sleeps to recharge batteries so be it. I don't have half the stamina I used to have and I'm into my 6th of 10 years being in it. My dry skin, thin hair plus everything else...it's a nightmare but what else can I do. So my heart goes out to all you fellow survivors and for you who are also in Tamoxifen I truly feel for you all xx

EDIT: I meant to also say that apart from the side effects of Tamoxifen giving you menopausal symptoms, I've had a full hysterectomy 2 years ago. I'm therefore experiencing double trouble of everything but obviously can't take HRT does/has anyone else suffer/suffered like me and if so any ideas as to what might help please? I just feel I'm running on empty most of the time. Thankyou xx

Parents
  • Hi,

    I am sorry to hear about your side effects. I am post menopausal as I am 68, but recently have been having hot flushes another side effect of the hormone treatment.

    I have achy bones and stiffness sometimes, I have just posted about my side effects on Anastrazole. I am only 9 months after treatment for breast cancer. I too am so fatigued that I contacted the nurses and they suggested stopping for 6 weeks and see how I feel. Some people decide to stop the medication altogether but does the worry of cancer recurrence outweigh the side effects? I too have gained weight and and am really not the same person, losing a breast too is so traumatic! 
    The bone loss is not good either caused by these drugs 

    You are a long way ahead of me 6years on this medication! I'm going to try the 6 weeks break and see how I feel.....

    Silver 
     

Reply
  • Hi,

    I am sorry to hear about your side effects. I am post menopausal as I am 68, but recently have been having hot flushes another side effect of the hormone treatment.

    I have achy bones and stiffness sometimes, I have just posted about my side effects on Anastrazole. I am only 9 months after treatment for breast cancer. I too am so fatigued that I contacted the nurses and they suggested stopping for 6 weeks and see how I feel. Some people decide to stop the medication altogether but does the worry of cancer recurrence outweigh the side effects? I too have gained weight and and am really not the same person, losing a breast too is so traumatic! 
    The bone loss is not good either caused by these drugs 

    You are a long way ahead of me 6years on this medication! I'm going to try the 6 weeks break and see how I feel.....

    Silver 
     

Children
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