Late onset of chemo side effects

Hi, I had breast cancer 8 years ago and had chemtherapy surgery and radiation. I had significant problems with the chemo and the herceptin afterwards but they disappeared once the treatment stopped. About 3 years ago I started having breathing problems , palpitations and digestive difficulties. I as seen by various specialists who carried out endless tests and ended up shrugging their shoulders and scratching their heads. In the last couple of months along with the continuing breathing problems, I have developed pain, numbness and tingling in my hands. My GP thinks that this is chemotherapy induced neuropathy. Has anyone else started to have symptoms so long after the treatment stopped. I must add I have been referred to a neurologist so I hope I will get some answers at last.

  • Hello sandra3364

    I'm sorry to hear about the health problems that you've developed over the last few years. It sounds like it's been a difficult time for you and it's understandable that you may be feeling fed up with the lack of firm answers. Hopefully, you won't have to wait too long for the Neurologist referral and they will be able to help. 

    I'm unsure if we've any members here who have developed late side effects from treatment. If we have then I'm sure they will post to share their experiences ith you but in the meantime, you may want to give our team of nurses a call as well to pick their brains. I'm sure if they can offer any advice or information they will. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040. 

    I do hope that things improve for you soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • HI I may have some insight. Im not a professional just another cancer survivor whos dealt with other chronic illness so feel free to take this with a pinch of salt but I started getting some similar symptoms to you about 5 years ago and even put a similar post on here myself at the time, now im being tested for something called POTS. It doesn't mean thats it in your case but may be worth looking it up to see if you relate, people with pots are often misdiagnosed/undiagnosed for a long time. I've also heard it can sometimes be linked to chemotherapy. Fibromalygia may be something else to look into whch is often caused by extreme stress and traumatic expereinces such as going through cancer, I've dealt with cfs which is very similar. But yeah I dont think its that uncommon to have effects so long after. I've heard quite a few people have. I hope you get some answers soon when you go to the neurologist. :) I know how frustrating it can be to not have answers!