Tamoxifen side effects

Good morning all,

I have been taking Tamoxifen since February this year after having a small lump and lymph node removed in January. My cancer was stage 1 hormone receptive with a very small chance of it returning, my lymph node was clear. 

I was never aware i had breast cancer it was at my first mammogram due to my age that it was noticed (52 and no lump)

I was put on Tamoxifen due to the  nature of my cancer, hormone receptive and told i should take it for 5 years. I have seen my oncologist once when she prescribed it then i had a telephone consultation (due to covid) which lasted all of 3 mins where she said she was happy with how things were and wouldnt need to consult with me any more. 

The thing for me is I feel absolutely lousy on this medication, my joints hurt, i feel light headed, my flushings are at volcano level. Into the bargain I have damaged my piriformus muscle and find it very painful to walk let alone do any exercise. I stopped Tamoxifen for 1 month to see if it contributed to the pain of the piriformus but it didnt, although i did feel good for being off T. I am now back on it and these past few days have been awful, sickness, dizziness, aches, flushes, emotional, the list goes on. I can't face the next 5 years of taking this medication, surely quality of life has to out weigh feeling this way? 

 

  • I'm sorry to read of the difficulties you've been having with Tamoxifen Anma.

    It sounds very tough and if you feel it's affecting your quality of life do be sure to get in touch with your doctor so you can have a chat about this and see what other options may be available to you.

    Many of our members have experienced similar side effects from Tamoxifen so you're not alone on this journey and I'm sure some of them will offer their support and advice to you soon.

    In the meantime if you'd like to speak to one of our lovely cancer nurses they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator