I am suffering the same, I feel that the side effects are ruining my life, I ache all over from the moment I wake, I cant sleep and it can go on for days just having 4 hours a night, which then makes me scatty and like a zombie. I feel as if life is being sucked out of me.

I refused chemo so it seems important to stick with this, so far tried letrizole, temoxifen and now I am on exemestane....thinking of going on a wing and a prayer.

I've just come off exemestane

I finding tamoxifen is much worse to be honest. 

Which I am now going to stop taking as I can't cope much more with it. 

Would love to hear from anyone that has decided against it....... 

Hello,

well I have made a 'job' out of this very topic??!!

Have to say though many people  on this site have told me that the 'brand' of any hormone makes a big difference to how these pills affect you. I only wanted Femara (Letrozole) and that's what I am  taking every other day. As such it doesn't affect me at all. I may be a bit more tired than normal but my life hasn't stopped owing to these meds. I am sure I ought to take it every day but I am happy to take it like this as it may fill in about 1% of risk and it may not. The percentage of benefit hormones gives you feels (for nearly everyone!) very tiny indeed. I did consider just not bothering but this way suits me right now. 
 

There are no clear cut answers on this one. They can really mess your life up. If they were making me suffer

on a daily basisI I would definitely stop them. It's a very personal decision. My oncologist isn't isryicukstky pressing them. He says the benefit is tiny but big if it happens that you are the 1in 100 with a recurrence!! True!!

Take care. I wish you well. 

Kebbs 

Hi,

Ive been on tamoxifen since December. I feel constantly exhausted, not having a decent nights sleep due to hot sweats, aches and pains and leg cramps. I saw my bc nurse 2 weeks ago. She did suggest other medication to help with the night sweats but I'm struggling with taking tamoxifen and don't want more medication. She also sent me for a blood test but I know it will be all normal! So I've made the decision to stop taking my tamoxifen as a trial to see if it is that, that is giving me all these side effects. I've stopped now for just over a week and for the past 4 nights I have slept fantastic!! No night sweats! Which also means I'm not feeling so exhausted! I know it is important I take this medication and I do plan to start taking it again but I needed to know for sure, if it was causing me to feel so terrible!! I'm going to stay off it for 4 weeks and then plan to get back on it, although 10 years of this fills me with dread.

Caroline x