I was prescribed Letrozole about 6 weeks before my operation, bilateral mastectomy with implants. I had no radiotherapy or chemotherapy. After five years, last September, my GP said that I should stop takingt the Letrozole, but could not answer any of my questions, e.g. why should I stop; would I benefit from stopping; would I benefit from continuing, who would monitor me, etc. She said that she would find out and let me know. By the November, I was so stressed about the situation that I stopped taking the Letrozole. As I had still not received a response by March this year, I visited my nearest cancer clinic to find out more. I received a telephone call a few days later to advise me to keep taking it for another five years. When I said that I had stopped at the end of November, I was advised to start again, as that would be okay.
I started taking the Letrozole again in April, but now realise that all the side effects have returned, making me realise how much better I had been feeling without the drug. So, I am now in turmoil about whether to carry on or stop.
There is no check up system in this area, so how would I know if I had a secondary cancer, and whether this was more likely without the Letrozole. And, without blood tests, which my local surgery are not keen to do, surely there would be no warning signs.
I am a calm, level headed person, but at the moment the mind games will not go away.