Thank you

Hi everyone,

I just wanted to say thank you for your honesty and your posts. I am so depressed now. I feel like most of my life and enjoyment of life has gone. I have the cancer in 2016 and like many of you had several ops, radiotherapy, chemo, herceptin. I've had 3 different post cancer drugs. Two of them made my hands stiffen unbearably so I couldn't write. I work in a school, so not great. Now I am on tamoxifen and have been for about 18 months. I am in so much pain. My hips, knees, ankles especially. My ankles swell up, I have such bad cramps in my stomach, legs, feet and sometimes my hands. If I manage to walk around a supermarket that's me done for the day. My husband and I try to go for a walk with the dog at weekends but they have to stop when I say. I work full time again now and I cry with pain at the end of the day. Fortunately I work with some incredibly supportive people. I thought it was just me, was I being pathetic. But your posts make me feel like I'll not alone. I've got another 7 years of tamoxifen. 

  • Hi Chocoholic (I'm one too) 

    So sorry to read your post. I'm afraid I have limited knowledge of the drug you refer to (I'm here because a parent had cancer). However, just wanted to send a virtual ((((hug)))) as it sounds like you're really going through it at the moment xxx

    I know there are some other ladies on here who have referenced Tamoxifen and hope they can help you with some suggestions for your symptoms xxx 

    What does your medical team have to say about this? Have they suggested anything that could be taken alongside Tamoxifen to manage pain, swelling etc? Do you think your employer could do anything to make you more comfortable at work (you're there quite a few hours in the week). Xx thinking of you xX

  • Ahh thank you so much. You are so kind. I'm sorry your parent had cancer. Supporting someone through it is so difficult. 
     

    I have been prescribed high dose codeine but I can't drive with it and it makes me sleepy. Work are very supportive so I'm very lucky. Xxx