Anastrozole - ugh!!!

After having stage 2 hormone receptive cancer, I had a lumpectomy and radiotherapy in 2016.

Facing up to cancer and the surgery were a piece of cake, compared to the side effects of the medication.

I started off with Letrozole and put up with the side effects until one night near Christmas, I was pacing the freezing cold conservatory floor, to ease the itchiness and bright red soles of my feet, to no avail. Eventually, I was seen by Oncology and changed to Anastrozole.

Although better, the joint pain, dry nose canal & nose sores, dry mouth and teeth/gum damage, excessive sneezing and runny nose (despite it being dry!!!), anxiety, depression, weight gain, higher cholesterol, skin itchiness and irritation, frequent bladder infections and finally, such horrendous vaginal dryness and vulva pain (I cannot even insert a 'yes' capsule without it being agonizing) and the fact that I have physically been unable to make love with my husband for over a year, enough is enough. I am 57 and want a life!!!

I now have to have bladder surgery, which I am convinced is due to the fact that the Anastrozole is drying my body out on the inside and I feel like an old, depressed, unfit lady, who used to be fit and a happy bunny, but can now only do gentle swimming (i've been told I am lucky to be able to do that!!!!).

The Oncologist/GP and Pharmacist have suggested changing brands, but none of them have taken responsibility for this and I have been left as the 'man in the middle', desperately trying to sort this out, when I am the patient!!

Cancer truly sucks and now that the yearly follow-up appointments with the breast care nurses and Consultant have have been pulled in the UK, i'm sure i'm not alone in feeling totally let down and left to sort myself out re the ongoing 10 year medication regime.

I have taken myself off Anastrozole now and have done so for the last month. Have I done the right thing - who knows, but I can't stand it any longer.

  • Hi Holls

     

    thank you for replying, I will try that, it's really nice being able to talk to others about this, I thought it was just me until today.

    i think I might change doctor and try what you have suggested.

    i hope all is going ok with you.

    H

  • Hiya

     

    I just hope I've helped a bit. I remember feeling isolated and so low when I was at my worse, so I just had to reply.

     

    i think it's worse when you've been on HRT, as it's like a double whammy. Not only do you have to come off the HRT quickly, which is a massive shock to your system, but you also have to start the cancer drugs, which lessen the oestrogen, so your body just doesn't know what the hell has hit it! Also, the HRT makes you feel so good, so sudden withdrawal stops all those good feelings.

     

    i wish you all the luck & much happiness with your new husband (congratulations by the way).

     

    Pleaae do keep me posted as to how you're getting on.

     

    All the best x

  • Thank you very much, will do xx

  • Hi. New to breast cancer. Had lumpectomy and full lymphnode removal. All ready terrified and found cancer spread to spine and other bones.

    At wits end i read all comments on anastrazole as that is what i was prescribed. Took me a week to decide to take my first one. However 4. Months on of regularly taking i feel absolutely fine. Although obv cancer not curable i feel fit and well. No side effects so i guess im lucky.

    I used to have ibs for years and found this has gone..so just a little good news for anyone new to astrazole. Give it a go at least. Love to all xx

  • Hiya

    I'm so sorry to hear you're so poorly & well done for being so brave about it & taking the prescribed meds.

    All our bodies are different & I'm thrilled to hear you're feeling so well & that obviously the treatment is agreeing with you. Long may it continue to do so, as well as keep as working to help you.

    Wishing you all the very best.

    Take care & keep going x

  • Hi , 

    Just seen your post from a couple of years ago when searching . So sorry to hear that you are having problems . I changed to Anastrozole 19 months ago and now suffer from low mood and anxiety .  I was told it would settle down but it has not . 
     

    anyway hope things have improved for you .