Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

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  • Hello Lizzell, 

    I am sorry to hear that coming off Tamoxifen after 10 years has left you feeling so exhausted and emotional. 10 years is a long time to be taking a drug and it may be your body's way of adjusting to the change. I would maybe give your doctor a call and describe these symptoms in detail. I am sure your GP will have some good advice for you and suggestions to help you feel better again. I do hope these symptoms will subside very soon and that the doctor can help you get back to normal again in no time!

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • I also have bee long term on Tamoxifen just short of 15 years  but I’m struggling a bit in that my energy levels are pretty poor and I’ve not known anyone the same to compare notes . My skin is very dry and I’ve still got hog brain my toenails are are very crumbly which isn’t very nice

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  • I also have bee long term on Tamoxifen just short of 15 years  but I’m struggling a bit in that my energy levels are pretty poor and I’ve not known anyone the same to compare notes . My skin is very dry and I’ve still got hog brain my toenails are are very crumbly which isn’t very nice

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