Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

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  • Hi

     

    i am slightly hijacking this thread, off topic...,just wondering if any of you ladies who have been on tamoxifen for 10 years started out as node positive, grade 3 diagnoses? I am recently diagnosed and it feels almost impossible I will be here in 10 years so guess I'm looking for some hope from long-term survivors. (HER2 neg/eR positive) 

     

    thanks 

  • Hi there, I was grade 2 but node positive and large tumour (5/6 cms) strongly ER positive and still here 10yrs later! Just about to come off Tamoxifen after 10yrs. You must be feeling really anxious atm but remember that treatments have improved massively over the last 10yrs too. Good luck Xx

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  • Hi there, I was grade 2 but node positive and large tumour (5/6 cms) strongly ER positive and still here 10yrs later! Just about to come off Tamoxifen after 10yrs. You must be feeling really anxious atm but remember that treatments have improved massively over the last 10yrs too. Good luck Xx

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