Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

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  • Hi

     

    i am slightly hijacking this thread, off topic...,just wondering if any of you ladies who have been on tamoxifen for 10 years started out as node positive, grade 3 diagnoses? I am recently diagnosed and it feels almost impossible I will be here in 10 years so guess I'm looking for some hope from long-term survivors. (HER2 neg/eR positive) 

     

    thanks 

  • I was just wondering about these side-effects as I will be reaching my 10 year anniversary on Tamoxifen in about a month's time, but I wanted to reply to your post hel39. I was diagnosed with node+ ER+ HER2- BC (grade 3) in May 2011 and I'm still here. I'm sure you're feeling overwhelmed right now, but long-term survivorship is increasingly common, thanks in part to Tamoxifen.

  • Thank you for the reply. Yes, so overwhelmed- pre-menopause, high grade and still awaiting for node-clearance this Thursday to see how many are positive. Just so frightened I won't see my children grow up. 
     

    congrats on your ten year anniversary (if that's the right word). It is nice to know people respond that well to the hormone therapy. 
     

    thank you again. 

Reply
  • Thank you for the reply. Yes, so overwhelmed- pre-menopause, high grade and still awaiting for node-clearance this Thursday to see how many are positive. Just so frightened I won't see my children grow up. 
     

    congrats on your ten year anniversary (if that's the right word). It is nice to know people respond that well to the hormone therapy. 
     

    thank you again. 

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