Hi Lizzell,

I realise this post is a little old now but I wondered how  you are now? Did you get to the bottom of the cause?

I've recently come off Tamoxifen  after 5 years and I have never felt worse. Generally I was ok taking it, I didn't really struggle with side effects. However since stopping I feel exhausted and very snappy. But mostly emotional. I'd say for the first time in my life really depressed. 

I'm seeing my GP soon. So much info online about taking Tamoxifen but not a lot about stopping!

X

I've stopped taking tamoxifen for 6 weeks after taking it for 4 years. I've tolerated it quite well and the effects of the menopause but I have felt dreadful since stopping it. I had an abnormal bleed after 15mths of no periods so had a hysteroscopy and they found a polyp. My oncologist wants me to have some bloods and I needed 6 weeks without the tamoxifen. I've plummeted into a horrible state of feeling so low, tired and completedly depleted of energy and emotions. 

I've been on Tamoxifen for 11 years I'm now 56. I've stopped  tamoxifen for 2 weeks now. It's reassuring to see these posts. I feel nauseous, very hot all the time, brain fog and extremely tired. Hoping this wears off over time

For me the side effects of tamoxifen/menopause have been tough - obviously very grateful not to have cancer but give us a break!! I thought stopping tamoxifen would reduce the side-effects - tbh my GP doesn't really know how to help. 

I've been on Tamoxifen for 11 years I'm now 56. I've stopped  tamoxifen for 2 weeks now. It's reassuring to see these posts. I feel nauseous, very hot all the time, brain fog and extremely tired. Hoping this wears off over time

For me the side effects of tamoxifen/menopause have been tough - obviously very grateful not to have cancer but give us a break!! I thought stopping tamoxifen would reduce the side-effects - tbh my GP doesn't really know how to help.