Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

Parents
  • Hi, I'm 56 and stopped taking tamoxifen last week after taking it for 10 years. My side effects so far. I feel like I have a head cold and my skin is a bit shivery and feels not right. My eyes are constantly sore, not agony but uncomfortable. Also and unusually, I'm a bit constipated. My energy levels are a little down on normal. Thanks, I hope this helps x

  • The symptoms I previously had have mostly subsided but now I am struggling with hot flushes especially during the night  and I spend most of the night trying to cool down and getting out of bed so the bed cools down which is leaving me exhausted in the morning. Has anyone else suffered with the same thing and found a solution that helps.

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  • The symptoms I previously had have mostly subsided but now I am struggling with hot flushes especially during the night  and I spend most of the night trying to cool down and getting out of bed so the bed cools down which is leaving me exhausted in the morning. Has anyone else suffered with the same thing and found a solution that helps.

Children
  • I came off Tamoxifen about a month ago after being on it for 11 years. I’m 58 and had breast cancer 11 years ago.

    i had terrible hot flushes while I was taking it but considered those to be the least troublesome side effect after all the other treatment I’d had.

    Since coming off, I agree with others on this chat  - I feel generally a bit unbalanced ie more emotional, have terrible brain fog and now I’ve also got tinnitus. Is that just a coincidence or does anyone else have tinnitus?

  • Hi

    I've been off tamoxifen a month now having been on it for 18 years. I've found alot of the symptoms on these posts affecting me. Like you all I wasn't warned about feeling this rubbish! My symptoms include flu like so much so I take paracetamol to relieve them, tiredness and much worse hot flushes. Nausea is another one! Like others Side affects of tamoxifen were mostly hot flushes. I'm    Hoping the symptoms I'm getting now will dissspate soon!

  • Hi, I've just come off tamoxifen this new year having been on it for ten years. I was 48 when diagnosed. The main issue for me with tamoxifen was flushes and polyps, which I had surgery to remove. 
    I've only noticed one comment on here saying about feelings of nausea since coming off the medication. I have felt off balance and nauseous since yesterday and today I've been vomiting. Just wondering if this is a result of finishing tamoxifen after 10 years. I'd be interested if anyone has experience of this. 

  • I came off tamoxifen after 10 years two weeks ago and I have felt weird! Tired, spaced out, unbalanced, I can totally forget what I'm doing in the middle of doing it! Not ideal when you're trying to start a new business. My body aches and I feel like I have chronic fatigue symptoms similar to which I had 20 years ago.  I'm 50 but feel more like 80 and it's only been two weeks...no, I wasn't told about side effects of stopping tamoxifen either. But anyway, well done ladies. It's been a helluva journey! 

  • Hi I am also getting nausea - did it go away?