Life after ACC diagnosis

Hi, I am now one year post ACC diagnosis and am finding my fears of it returning overwhelming. Last August I had a neck dissection to remove  my left salivary gland and nodes. I then had 33 days of radiotherapy as they couldn’t get clear margins. I’m now having six monthly checks with the oncologist but these just seem to involve him prodding my neck and asking if I feel ok.... is this usual? When I asked when I’d be scanned again he said that it wasn’t hospital policy to scan unless they felt something. I’m sorry to be so down but I’m so scared all the time it’s affecting every part of my life. I cried at work the other day.... for no reason other than a sudden rush of panic. I feel I can’t  plan ahead in case things have to be cancelled which is irritating my lovely husband, this on top of struggling to get insurance. I am struggling to sleep, hence my 4am post and I’m not sure that any of this will change. Do you know if there is any counselling available and how to access it?

  • Hi Alidee.

    You don't need to apologise for being down, our members have been there and understand how tough it can be to deal with these thoughts and feelings.

    We do have some general information about counselling on our website just here but it may be worth popping in to see your GP and letting them know how this is affecting you at the moment as they should be able to make you aware of services in your area that you can access. Our cancer nurses are available Monday - Friday between 9a.m - 5p.m on 0808 800 4040 if you'd like to discuss this with them as well.

    In the meantime try not to be too hard on yourself and just take things a day at a time if you can whilst you work through this.

    Kind regards, 

    Steph, Cancer Chat Moderator