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Coming off letrozole

dancey
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I had breast cancer 7 years ago I am 71 yo

ive been on Letrozole for 7 years saw

my oncologist last week and said they are

now saying be on it for another five I said I’ve had enough just want to get my life back to be able to sleep st night fatigue all the time aches and pains loss of memory I am very fit I swim hour and walk hour every day if I didn’t I would cease up I have

decided to stop taking it to see how I feel will the cancer come back and will I withdrawal symptoms it’s been 3 days now

i am feeling little pains In my breast is that normal if I don’t feel any better after 3 months I will start taking it again I had a full body scan and mastectomy three weeks ago and I am all clear of cancer has anyone else experienced what I have I had lobular cancer had chemo and radiotherapy 

Dancey

 

 

t

  • Offline in reply to Hilary125

    My joint pain has only changed a little so far I've just had a new knee so hopefully it will get better 

    and im still tired but I find im more tired when my b12 is die every 3 months 

    this may be worth you having blood test to see what you lack.

    my husband has just said he thinks im doing more so I must be

    My life has definitely change for the better since coming off letrozole and I hope it will still improve as I go along 

    keep me updated 

    I will keep fingers crossed xxxx

  • Offline in reply to Ruthy53

    Hi ladies, can i ask someone who might have similar to me health conditions.

    I am type 1 Diabetic and I have Hipoterodoizm as well as autoimunne disorderas well as inflamatory artritice  and on Top of it BC , mastectomy on rg right side in 2019 . Oh yes and i suffer from depression and anziety on medicatuon for that .

    I had radioterapy in 2020 after my cancer reterned almost in the same place as before after 6 month after last surgery.

    I have been taking tamoxifen for about a year and my oncologist told me it is not working for me ( i had very little side effects from tamoxifen tho )

    then about 3 month ago , i have been given zolodex and lerozol and my life became to be hell .

    The letrozol make me fill ill most of the days, i can sleep, my heart rate hight , I have horrible mood swings and Hot flashes are absolutely killing me, i sweat as  a pig , headech and brain fogs are not nice, also i have memory loss and Im only 49 . My quality of life is dretfull. Im going throw horible divorce in the past 18 month ... still on and i feel like i dont want to take it any longer .

    Any advise ?

     

     

  • Offline in reply to Just2703

    Hi all

    just thought I’d give you a little insight of when I came off Letrazole after almost 10 years.  Unfortunately, I didn’t have any advice on weaning off it.  When I stopped taking it my hormones were all over the place, just as if I was going through the menopause again.  3 months down the line and it’s settling down, but the anxiety I experienced going through the menopause did raise its head again.  My doctor was brilliant and helped me through that stage, so if you feel you are suffering, go to your GP don’t suffer, your GP will help you. 

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