Hi Flissy100

Great to hear that your CT scan showed that there has been no more growth. I'm sure that must have been reassuring news. 

I can imagine that it's really frustrating still having these pains 7 months on from your surgery with no firm answer about the cause. I've had a look through some of the forum posts and I can't see anyone else who has posted with similar issues, although that's not to say no one has experienced them. 

I do hope that with time things may settle down some more for you. 

Best wishes, 
Jenn
Cancer Chat moderator

Hiya, I am having nearly the sane issue after upper right lobectomy, I have tried in vain to totally come off oramorph but I am down to most days just 2 1/2 -5 mils at night plus paracetamol 4 hourly, this is working, I also have nerve pain samexarea and believe it or not I find baby powder such a comfort, I am no doctor but I find if you let the pain meds drop the pain creeps in, try keep them regular, on a really bad day I only use 10mls at most now, all the best  fiona

Hi

new to forum as I had rt upper lobectomy vats.I am on codine 60mg n 1gm paracetamol.I have tried to taper it many times but pain comes back not in the wound but ant chest wall n neck muscle.I am going tonosteopath as well.

v disturbed as can't go to join my job.any suggestion for pain as no other pain killer give any relief.what is the the right time to start taper.

Hi

new to forum as I had rt upper lobectomy vats.I am on codine 60mg n 1gm paracetamol.I have tried to taper it many times but pain comes back not in the wound but ant chest wall n neck muscle.I am going tonosteopath as well.

v disturbed as can't go to join my job.any suggestion for pain as no other pain killer give any relief.what is the the right time to start taper.

Although my Consultant, Oncologist and 'Head Honco' Oncologist were all brilliant people they don' pre-warn you of certain outcomes. I've read a lot on the Internet (not American stuff, strictly U.K.). Found some honest truths on what you will experience and for how long. Obviously EVERYONE is different. That doesn't mean that you are doing anything wrong or not recovering properly, each case is individual. I had my Op Feb 2019 and I still get pain in my ribs, yes, after all this time. I had 8 doses of Chemotherapy 4 weeks after the Op to ensure the critter didn't return. Had MANY post Chemo problems.Still have 'Post Chemo Neuropathy' on the balls of my feet. I've been prescribed Gabapentin for this but like all long term meds, the body gets used to it. Sounds somewhat patronising but I say to myself and others 'I'M STILL BREATHING'. Which really IS a plus. I hope all of your treatments work, and I wish you well x